Still no idea what is going on with my daughter. Am at a loss as to what to do now. The only thing that has come up high is her Erythrocyte sedimentation rate is high
17mm range (1.0 - 12.0)
The doctor requested a full thyroid check but it wasn't done as her TSH came back as
0.75 (0.38-5.33) she is not on any medication for thyroid.
Her D3 is 137 which is fine
Folate 9.6 (3.1-19.9) she takes methylfolate every day 400mcg
B12 703 (180-914) she has injections roughly every 6-8 weeks so this isn't really relevant.
Ferritin was not done.
She is waiting for an ultrasound on her neck though as she has a lump which could be either a cyst or blocked saliva gland or something else. She has had it a while but its now painful.
She supplements with B12, Folate, Ferrous fumerate, D3, Biotin, vitamin C. She didn't take the Biotin for 5 days before the test so her results should be accurate.
Totally fed up with years and years of struggling and trying to find answers.
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Catlover3
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If she can, it really would be a good idea to get tests done privately. Has she ever had her FT4 and FT3 tested? How about antibodies?
Rather than taking biotin and folate separately, it would be better if she took a B complex, because the Bs all work together and need to be kept balanced.
Well, although her thyroid is struggling, according to her TSH, she's not yet hypo. But there is a possibility she has Hashi's, because here TPO antibodies are near the top of the range.
Her ferritin is low, but I don't know enough about iron to be able to say it this needs supplementing. No vit D?
The doctor requested a full thyroid check but it wasn't done as her TSH came back as
0.75 (0.38-5.33) she is not on any medication for thyroid.
TSH is produced by the pituitary, not the thyroid. If your daughter's pituitary is diseased or damaged for any reason then it might be incapable of producing enough TSH for her needs.
The only way of telling whether the TSH level is appropriate is to measure the actual thyroid hormones, Free T4 and Free T3, at the same time as the TSH is measured.
Like greygoose, I would suggest finding out about thyroid antibodies as well, because they can make the TSH fluctuate quite dramatically.
In people with thyroid problems, nutrients are often low, or at least lower than optimal, so it is worth finding out about these too.
It is possible to get tests done privately (for a fee obviously) without involving a doctor or having insurance. The tests are carried out on a finger-prick sample of blood. Having ordered a test kit the equipment required to prick the finger(s), vials for the blood and packing to send back to the lab is sent to you through the post.
(The above test used to contain 11 tests, but they've knocked out the Total T4. This is not much of a problem to most people because the Total T4 is often not helpful.)
Thanks for the reply. She has had lots of tests privately through either Blue Horizon or Medichecks but unfortunately is unable to use the finger prick tests. We have tried and tried but can't get any blood out despite doing all the recommended tips. She has very poor circulation and tiny fleshless fingers! I am looking at her tsh which has fluctuated as in January her tsh was 2.37 (0.27-4.2) and is now 0.75 (0.38-5.33), she is not on any medication for thyroid.
She does suffer with hair loss, feeling cold, yet sometimes has the sweats,constipation, fluid retention in lower limbs, extreme fatigue, increased urination, migraines ,( had a very scary hemiplegic migraine), poor spatial awareness, bruises easily.
I am wondering about secondary hypothyroidism, as I have hashi's and thyroid problems are in the family.
It might give you some further clues as to what might be wrong or what you should investigate next.
feeling cold, yet sometimes has the sweats,
Having episodes of shivering with cold while sometimes sweating profusely is something that I suffered with for years and I think it might be a common combination of symptoms on this forum. When I started treating my own thyroid I got limited relief from this. It was only when I took something to help lower my high cortisol that I started noticing an improvement in my temperature control and sweating. I've read that low cortisol can cause these kinds of problems too.
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