Hashi with light at end of tunnel after experim... - Thyroid UK

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Hashi with light at end of tunnel after experiments and Endo meet?

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For those who recall - I'm Hashi 10 years and said I'd feed back after making changes and Endo meeting. Kept getting really bad headaches, brain fog, low energy, so instead of increasing dose as before, came off Levo altogether (not on doctors orders!) Plus gluten-free diet. Felt fab even after 7 weeks but immune numbers going through the roof so agreed with GP 125mcg Levo. 3 times I got disabling headaches a few days after starting Levo. So stopped levo to check and headaches eased. Listened to you guys and stopped Teva and Actavis brands and went to Wockhardt only. Able to take 125mcg now with no headache! Met Endo for first time. Supportive. He supports the notion and we'll see if it's indeed just the fillers - hope so. They thought even 100mcg may be sufficient soon as FT4 already back up to 20.2 and TSH of 3.56 coming down lots even though much longer half life (makes Endo think I respond well/significantly, not badly to T4 itself) . Let's see but a big thank you so far everyone. Feel like I got my life back - at least so far in 2018 after a lousy decade.....Thank you. I'm now boosting Ferratin B12 Folate Vit D3 too. So maybe no T3/NET issue for me at all? Endo says they are open to conversion problems but i seem to be doing well at present, T3 can be dangerous if not taken well and people often run to it too quickly before getting everything else clear first. Just for info. Experiment ongoing...very grateful to you all.

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Jazzw

What great news. Hope the improvements continue! :)

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