I have been diagnosed with TED by my endo and she has put me on a short course of 20mg of prednisone and referred me to a ted eye specialist. (i am also taking selenium, cut out gluten and have eye drops).
This came 2 weeks after an RAI scan (where they use a tiny bit of iodine) and this apparently has triggered it off. When I first noticed the pain after the scan I went to eye casualty who sent me home with ibuprofen and eye drops because my vision hadnt been affected (even though I was crying in agony).
The pain of pressure behind my eyes hasn't gone and I am worried about waiting for the specialist as my eyes are becoming more and more bulging and the pain makes it hard to focus at work.
I know the active stage can be months long, but does this pressure pain stay this bad? Seems unbearable.
Will the eyes get even worse after the steroids have stopped (pain/bulging) How do I get to see a specialist sooner? Any advice? I still haven't had my appointment confirmed and I am so worried and sad about it all. I want to see someone at Moorfields but no idea how i get to see them.
Please can anyone tell me living with ted gets better/more manageable?