I’m scared I’ve had a letter today after my biopsy no calls or appointments yet can anyone help me understand my letter? It’s not results yet but I don’t understand the last bits it says “on examination there was a left side goitre and no cervicle lymphadenopathy . Scope showed some mild interarytenoid pachydermia
She had a 2.3x2cm with generalised nodular appearance with some ill defined hypoechoic areas and microcalcification.
In addition a small 4mm
Left level 111 lymph node was found with some loss of normal internal morphology “
Might sound silly but I’m petrified I’ve got cancer
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Leab8
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I'm so sorry you've been sent a letter with no proper explanation that's left you worried.
I would suggest contacting the department that sent you the letter (assuming you're in the UK, there should be a phone number and extension on the letter) and ask to speak to someone who can clarify.
If you end up having a telephone conversation, maybe put the phone on "speaker" setting and have someone else there with you to take notes (I know that I rarely take everything in when speaking to medical people on the phone).
Hi thank you for replying, I’ve tried that she couldn’t tell me anything and said they want to see me but doesn’t know when and that the consultant will call me later x
Hi sorry it’s been a while but it did turn out to be thyroid cancer it spread and I’ve had two surgeries and waiting for radioactive iodine treatment next x
I am doing much better since my TT in February for Graves and toxic multinodular goiter. Meds not adjusted yet but I am on the way and feel better every day. Thanks for asking! 🤗
I'm sorry for all you've been through, Leab8. I hope you've been getting good care and your recovery is going well. I hope you are soon stabilised wrt your thyroid. Take care.
Thsbk you atm they hadn’t even increased my Levo which I think is rediculous and I’m not doing well emotionally I’m terrible and feel like how I didn’t prior to being diagnosed with a underactive thyroid in the first place 😞
If it was cancer they wouldn't be sending you letter about it imho. They would be telephoning you to make an appointment to discuss your results. I have never heard of the NHS telling anyone they have cancer by letter.
I said , if you read it again that it turned out to be cancer. Which is a fact. The letter was after my biopsies were done, the letter itself was not telling me I had cancer. I was saying it turned out to be cancer
Oh I see what you mean I apologise. I must dig out my thyroid scan results because it said I had an enlarged multi-nodular goitre. Luckily they didn't want to biopsy mine. I have just looked at the date and see it is 4 months ago. How is your treatment going now?
I wouldn’t have said I have cancer if I didn’t. And if yours says the same and you have an enlarged neck then request they biopsy you rather than worrying and chancing it believe me it’s not worth it
I have had two scans in 12 years and they have never told me I need a biopsy. My last one was 2 years ago and touch wood it hasn't got any bigger. I have been worried because if you have high Thyrogobulin antibodies it can mean cancer but mine have started to go down now.
Lora, you should get a biopsy of your nodules anyway at least every 2 years. They can’t tell from the ultrasounds alone and I wouldn’t rely on that alone. I know I wanted the peace of mind.
They are tiny according to my Doctor and not worth doing a biopsy on. I have asked them and they said there was no indication they were cancerous. Just to add I have been having mammograms for over thirty years because my mother died of breast cancer so I am not neglecting my health.
I’m sure you are taking good care of yourself. I was simply mentioning it for your peace of mind. The size of the nodule does not matter with respect to cancer - the smallest nodule can be cancerous. By the way, I would never suggest that you have cancer - I would never want to scare you that way by saying so. Hope you are OK and doing well.
I am a bit touchy when it comes to cancer because as well as watching my mother die from it my best friend also died from it in her 40s. I know you mean well and if I though for one moment I was suffering from it I would be down the doctors demanding treatment at once. I know Doctors can get it wrong they did with my mom and told her that the breathlessness she was suffering was because she was anxious when in fact she had secondary lung cancer. Thank you for your advice I do appreciate it.
Understandable you’ve been through a lot with cancer but also your not be the only one that’s suffered in same ways with cancer too, and people on here are only here to support and help each other, to bring each other up no ones meant to upset you but please do try to keep in mind your not alone or the only one. And that’s why I want to raise awareness to try to help and stop it happening to anyone else that’s why I put my update on here not to try cause arguments on this thread.
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