Please help what this means ? : I’m scared I’ve... - Thyroid UK

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Please help what this means ?

Leab8 profile image
28 Replies

I’m scared I’ve had a letter today after my biopsy no calls or appointments yet can anyone help me understand my letter? It’s not results yet but I don’t understand the last bits it says “on examination there was a left side goitre and no cervicle lymphadenopathy . Scope showed some mild interarytenoid pachydermia

She had a 2.3x2cm with generalised nodular appearance with some ill defined hypoechoic areas and microcalcification.

In addition a small 4mm

Left level 111 lymph node was found with some loss of normal internal morphology “

Might sound silly but I’m petrified I’ve got cancer

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Leab8 profile image
Leab8
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28 Replies

I'm so sorry you've been sent a letter with no proper explanation that's left you worried.

I would suggest contacting the department that sent you the letter (assuming you're in the UK, there should be a phone number and extension on the letter) and ask to speak to someone who can clarify.

If you end up having a telephone conversation, maybe put the phone on "speaker" setting and have someone else there with you to take notes (I know that I rarely take everything in when speaking to medical people on the phone).

Hope you manage to get some answers.

Leab8 profile image
Leab8 in reply to

Hi thank you for replying, I’ve tried that she couldn’t tell me anything and said they want to see me but doesn’t know when and that the consultant will call me later x

in reply toLeab8

Shocking.

Hope the consultant gets back to you soon

x

Treepie profile image
Treepie

Try google for the terminology.

Leab8 profile image
Leab8 in reply toTreepie

I did, wasn’t a good idea.

Leab8 profile image
Leab8

Hi sorry it’s been a while but it did turn out to be thyroid cancer it spread and I’ve had two surgeries and waiting for radioactive iodine treatment next x

Greekchick profile image
Greekchick in reply toLeab8

Oh Leab, I am so sorry to hear that. I hope you are getting better now. Sending good thoughts your way and wishing you all the best.

Leab8 profile image
Leab8 in reply toGreekchick

Thank you, I was only letting everyone know on here to raise awareness and hopefully preventing it happening to someone else. X

Greekchick profile image
Greekchick in reply toLeab8

Glad you did. Sending a hug your way 🤗

Leab8 profile image
Leab8 in reply toGreekchick

Thank you hope you are ok x

Greekchick profile image
Greekchick in reply toLeab8

I am doing much better since my TT in February for Graves and toxic multinodular goiter. Meds not adjusted yet but I am on the way and feel better every day. Thanks for asking! 🤗

Leab8 profile image
Leab8 in reply toGreekchick

When will they adjust your meds ? X

Greekchick profile image
Greekchick in reply toLeab8

It’s ongoing- I see my endo every 6 weeks , get bloodwork and the meds are adjusted each time.

wellness1 profile image
wellness1 in reply toLeab8

I'm sorry for all you've been through, Leab8. I hope you've been getting good care and your recovery is going well. I hope you are soon stabilised wrt your thyroid. Take care.

Leab8 profile image
Leab8 in reply towellness1

Thsbk you atm they hadn’t even increased my Levo which I think is rediculous and I’m not doing well emotionally I’m terrible and feel like how I didn’t prior to being diagnosed with a underactive thyroid in the first place 😞

wellness1 profile image
wellness1 in reply toLeab8

I hope you have family and friends to support you through this and ways to be good to yourself. Best of luck getting the treatment you need.

Leab8 profile image
Leab8 in reply towellness1

I’m struggling in all honesty xx

wellness1 profile image
wellness1 in reply toLeab8

I'm sorry. I hope things improve for you. Take care.

Lora7 profile image
Lora7

If it was cancer they wouldn't be sending you letter about it imho. They would be telephoning you to make an appointment to discuss your results. I have never heard of the NHS telling anyone they have cancer by letter.

Leab8 profile image
Leab8 in reply toLora7

I said , if you read it again that it turned out to be cancer. Which is a fact. The letter was after my biopsies were done, the letter itself was not telling me I had cancer. I was saying it turned out to be cancer

Lora7 profile image
Lora7 in reply toLeab8

Oh I see what you mean I apologise. I must dig out my thyroid scan results because it said I had an enlarged multi-nodular goitre. Luckily they didn't want to biopsy mine. I have just looked at the date and see it is 4 months ago. How is your treatment going now?

Leab8 profile image
Leab8 in reply toLora7

I wouldn’t have said I have cancer if I didn’t. And if yours says the same and you have an enlarged neck then request they biopsy you rather than worrying and chancing it believe me it’s not worth it

Lora7 profile image
Lora7 in reply toLeab8

I have had two scans in 12 years and they have never told me I need a biopsy. My last one was 2 years ago and touch wood it hasn't got any bigger. I have been worried because if you have high Thyrogobulin antibodies it can mean cancer but mine have started to go down now.

Greekchick profile image
Greekchick in reply toLora7

Lora, you should get a biopsy of your nodules anyway at least every 2 years. They can’t tell from the ultrasounds alone and I wouldn’t rely on that alone. I know I wanted the peace of mind.

Lora7 profile image
Lora7 in reply toGreekchick

They are tiny according to my Doctor and not worth doing a biopsy on. I have asked them and they said there was no indication they were cancerous. Just to add I have been having mammograms for over thirty years because my mother died of breast cancer so I am not neglecting my health.

Greekchick profile image
Greekchick in reply toLora7

I’m sure you are taking good care of yourself. I was simply mentioning it for your peace of mind. The size of the nodule does not matter with respect to cancer - the smallest nodule can be cancerous. By the way, I would never suggest that you have cancer - I would never want to scare you that way by saying so. Hope you are OK and doing well.

Lora7 profile image
Lora7 in reply toGreekchick

I am a bit touchy when it comes to cancer because as well as watching my mother die from it my best friend also died from it in her 40s. I know you mean well and if I though for one moment I was suffering from it I would be down the doctors demanding treatment at once. I know Doctors can get it wrong they did with my mom and told her that the breathlessness she was suffering was because she was anxious when in fact she had secondary lung cancer. Thank you for your advice I do appreciate it.

Leab8 profile image
Leab8

Understandable you’ve been through a lot with cancer but also your not be the only one that’s suffered in same ways with cancer too, and people on here are only here to support and help each other, to bring each other up no ones meant to upset you but please do try to keep in mind your not alone or the only one. And that’s why I want to raise awareness to try to help and stop it happening to anyone else that’s why I put my update on here not to try cause arguments on this thread.

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