NDT source : Hi all, Could anyone possibly inbox... - Thyroid UK

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NDT source

Beverly14 profile image
8 Replies

Hi all,

Could anyone possibly inbox me with reliable source for Natural Dessicated Thyroid please?

I have been taking Thyrogold since January but due to run out and would like to try something a little less expensive.

Also, does anyone take both NDT and levo together or know any reason why people might/should?

Thank you

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Beverly14
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Clutter profile image
Clutter

Beverly14,

How much ThyroGold have you been taking?

Some people add T4 or T3 to NDT if the proportions of T4 and T3 in NDT don't feel right.

Beverly14 profile image
Beverly14 in reply toClutter

I started with 150mg morning and 150mg early afternoon then increased to 300mg morning and 150mg afternoon as I panicked that I wasn't taking enough (previously on 150mcg levothyroxine) but now I'm taking 300mg Thyrogold and 50mcg levothyroxine as I've been extremely tired during the day but I'm really trial/error right now.

Also thinking I should probably ease myself back into levothyroxine over next few months for preconception as the info is mixed on NTD and pregnancy so just to play safe.

Dreading feeling how I was on Levothyroxine only though so looking to at least weigh up my options before speaking to my doc again on Thursday.

Clutter profile image
Clutter in reply toBeverly14

Beverly14,

Have you had a thyroid test to check levels since taking 300mg TG and 50mcg T4?

Beverly14 profile image
Beverly14 in reply toClutter

I only started that in the past week or so. I have appt for bloods tomorrow but they're just basic nhs bloods.

Unsure what the results will pick up as the I've been changing so much in past few months

Clutter profile image
Clutter in reply toBeverly14

Beverly14,

It's a waste of time. You need to leave 6-8 weeks after adjusting meds before having a blood test.

lozzypops47 profile image
lozzypops47

Hi Beverly, have you asked your doctor to prescribe NDT? Armour and Nature thyroid are both available on the NHS in the UK.... You can take Levothyroxine and NDT together, you just have to be careful of the doses . I’m looking into taking Levothyroxine and Lyrothyronine ( T3) together, I have an incredibly understanding open minded doctor so I’m very lucky. 😁

Beverly14 profile image
Beverly14 in reply tolozzypops47

I had a phone consultation but was caught off guard and not prepared. I told him how I was feeling on Levothyroxine to which he suggested it may be other things causing the symptoms (I known it's the hypothyroidism or being wrongly medicated) I mentioned NDT and he basically brushed it off but said he would speak to endo on my behalf (I'd asked about being referred) re the preconception etc and suggested I get bloods done, but I fear that's useless in UK.

I do plan to get private bloods taken but because I've been up and down and changing my doseage recently I've felt that wouldn't be any use at mo. Joy!

lozzypops47 profile image
lozzypops47 in reply toBeverly14

I totally understand how you’re feeling, as I’m going through a very similar situation. I feel absolutely rubbish all the time! I’m lethargic, I have migraines every day, fibromyalgia, dry skin, always cold , etc etc ...you know your own body and when your thyroid isn’t working properly.....even when the bloods come back “ normal” I’ve recently paid to have my reverse T3 done as that’s one test you really need, and the NHS won’t pay for it. If you go to thyroiduk.org there’s a link to medichecks and they’re a private clinic that will do all your bloods for you, they even have 15% discount at the the moment too. As for the NDT, your GP CAN prescribe it, but it’s down to their discretion. I have been prescribed both Armour and Nature Thyroid so it is possible, it’s just a case of whether they will or not.

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