T3 or NDT Source

[Tristy]

I am currently on Levothyroxine and my dose has been just increased. I haven't felt well since I've been on it but hoping that once I get to the right dose I will feel better. If that doesn't happen I'm wondering where I can source T3 or NDT. Please PM me. Any help would be appreciated. Many thanks.

[SeasideSusie Remembering]

Tristy You are being rather impatient considering you've only been on Levo for 4-5 months It can take months to start feeling properly better, and symptoms can take a while to catch up with good test results. You are still way off the usual results us Hypos feel best at - TSH 1 or below with free Ts in the upper part of range, as explained in your previous thread.

Plus with a Vit D level of 31 you have some serious supplementing to do to get to the recommended level. You also need to address the Hashi's and try to reduce your antibodies, with TG Abs over 2000 and TPO over 400 you need to follow the advice given previously.

What about B12, folate and ferritin? Did you get those results?

All vitamins and minerals need to be optimal for thyroid hormone to work and plus getting TSH down to 1 before you know if you have poor conversion and need T3.

[Tristy in reply to SeasideSusie]

Thanks, I do fully intend to wait for the Levo to work. I think I was just surprised how many people ultimately need the T3. I think I posted the B12, folate and ferritin results previously and you said they were ok. The only low one was the vitamin D which I'm dealing with now. Thanks for your ongoing help.

[SeasideSusie Remembering in reply to Tristy]

There was no B12/folate results, were they tested?

[Tristy in reply to SeasideSusie]

Sorry- yes they were tested.

B12 - 332 (200-900)

Folate - 5 (2-17)

[SeasideSusie Remembering in reply to Tristy]

Well they're far too low.

Folate should be at least half way through it's range.

B12 you can check for signs of Deficiency here b12deficiency.info/signs-an... and if you have any then post on the Pernicious Anaemia Society forum for further advice healthunlocked.com/pasoc

I have read (but not researched so don't have links) that BCSH, UKNEQAS and NICE guidelines recommend:

"In the presence of discordance between test results and strong clinical features of deficiency, treatment should not be delayed to avoid neurological impairment."

And an extract from the book, "Could it be B12?" by Sally M. Pacholok:

"We believe that the 'normal' serum B12 threshold needs to be raised from 200 pg/ml to at least 450 pg/ml because deficiencies begin to appear in the cerebrospinal fluid below 550".

"For brain and nervous system health and prevention of disease in older adults, serum B12 levels should be maintained near or above 1000 pg/ml."

Sublingual methylcobalamin lozenges are what's needed to supplement B12 yourself along with a good B Complex to balance all the B vitamins

[Tristy in reply to SeasideSusie]

Thanks SeasideSusie. I can see there are 1000mcg and 5000mcg strengths for the lozenges. Is it best to take the higher one to start with?

[Clutter in reply to Tristy]

Tristy,

1,000mcg should be ample.

[Tristy in reply to Clutter]

ThanksClutter.

[SeasideSusie Remembering in reply to Tristy]

It's your choice but to raise to a good level as quickly as possible you could have one bottle of 5000mcg to start (one a day, 60 in bottle I think) then change to 1000mcg as a maintenance dose.

Now mine is around 1000, I try to keep it there and for me 1000mcg X 5 days a week seems about right.

A decent B Complex containing 400mcg methylfolate, eg Thorne Basic B, will help raise your folate level.

[Tristy in reply to SeasideSusie]

ThanksSeasideSusie.

[Clutter]

Tristy,

Symptoms should improve once you are optimally dosed on Levothyroxine but you may find they lag behind good biochemistry by a couple of months. It is likely that some of your symptoms will be due to low vitamin D and they will improve in a couple of months when your levels improve if you take the advice given in your first post.

If members can recommend sources for T3 or NDT they will send you a private message. Sources can't be posted on the forum. To read a private message: support.healthunlocked.com/...

To send Tristy a private message: support.healthunlocked.com/...

[Tristy in reply to Clutter]

Thanks Clutter for your advice. I know I must be patient and I'll continue to persevere. I'm also dealing with the low Vitamin D level. Do most people respond to Levothyroxine (once optimally dosed)?

[Clutter in reply to Tristy]

Tristy,

The majority of people do but it does take time.

[Tristy in reply to Clutter]

Thanks Clutter.

[silverfox7]

Remember people who are happy on Levo don't post on forums! They may when something goes wrong g but often that's because they need an increase.

[Tristy in reply to silverfox7]

Thanks silverfox7. I realise that now and know I need to be patient! My dose was increased last week so I'm on the right track.