Endo results - help?: Hi hope someone can advise... - Thyroid UK

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Endo results - help?

Galadriel1 profile image
9 Replies

Hi hope someone can advise please, Dr tested TSH at Serum TSH level 4.56 mIU/L [0.35 - 4.94] Referral to endo. I took the symptom list and had filled it out but it was waved aside and ignored! I have loads of symptoms and I also have PA and vit D deficiency and where there is cross-over/similar symptoms I put B12/vit D ? to show it could be either. She did not even acknowledge it and shut me down. Felt she was just going through the motions of giving me an appointment.

My results were handwritten on a letter to say she would not be seeing me again oh and advised me to look into my "dietary lifestyle" :-

Cortisol - 259

FT3 - 5.1

FT4 - 10.0

FSH - 67.8

LH - 33.2

It was put down as "in keeping with menopause" I am post-menopausal.

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9 Replies
SeasideSusie profile image
SeasideSusieRemembering

Your TSH is far too high in range, normally doctors wait until it reaches 10 though before diagnosing hypothyroidism.

What are the reference ranges for FT4 and FT3?

Were thyroid antibodies tested?

Galadriel1 profile image
Galadriel1 in reply to SeasideSusie

That is exactly what was scrawled onto the bottom of the letter from Endo saying she would not be seeing me and as she noted below the results "In keeping with menopause" Despite me telling her I'm post-menopausal. No ranges given.

SlowDragon profile image
SlowDragonAdministrator

For full Thyroid evaluation you need TSH, FT4, TT4, FT3 plus TPO and TG thyroid antibodies. Plus vitamin D, folate, ferritin and B12.

Essential to test both types of thyroid antibodies plus vitamins

I see from previous post you are only on 800iu vitamin D from GP. Or do you self supplement to higher level?

Vitamin D needs to be around 100nmol for most patients

What about folate and ferritin levels too

Private tests are available

thyroiduk.org.uk/tuk/testin...

Medichecks Thyroid plus ultra vitamin or Blue Horizon Thyroid plus eleven are the most popular choice. DIY finger prick test or option to pay extra for private blood draw. Both companies often have money off offers.

All thyroid tests should ideally be done as early as possible in morning and fasting. This gives highest TSH and most consistent results. (Patient to patient tip, GP will be unaware)

If antibodies are high this is Hashimoto's, (also known by medics here in UK more commonly as autoimmune thyroid disease).

About 90% of all hypothyroidism in Uk is due to Hashimoto's

Galadriel1 profile image
Galadriel1 in reply to SlowDragon

Hi SlowDragon, I take my own Vit D now and I am presently taking a winter dose of 5000iu daily, I have B12 injections daily at the moment and take 5mg Folic Acid daily and a B complex, also 2000mg Vit C daily, 100mg K2 and Magnesium malate (in morning) and Glycinate (in evening).

They took loads of bloods but I didn't get anything other than these results. Told my G.P. on my next visit before results were in that she was not going to treat me, she was anti from the minute I walked in.

SlowDragon profile image
SlowDragonAdministrator in reply to Galadriel1

Time to see a new GP then and get private tests for any ones not already tested

Galadriel1 profile image
Galadriel1 in reply to SlowDragon

Sorry that was the Endo not G.P. G.P is concerned as he has noticed TSH is rising every test, he has been great and he referred me in the hope of it being sorted out. Unfortunately, he is now retiring and I will need to change surgery as he was the only one left I would see there. I am going for a private referral now. Just want to know what folk on here think so I'm a little better informed about these results when I go and also what I need to be asking.

Galadriel1 profile image
Galadriel1

Sorry should say was at 9am at the hospital and I was fasted but had been up for around 2 hours prior to the test.

Emyloulou profile image
Emyloulou in reply to Galadriel1

If your cortisol bloods where also taken at 9am that is a low reading and should be investigated x

Galadriel1 profile image
Galadriel1 in reply to Emyloulou

Emyloulou thank you for your reply. Can you tell me how you know it's low, what are the typical reference ranges? I have no idea what a low cortisol means and did not know if results are low or otherwise, I was not given any reference ranges. These numbers were hand written on bottom of letter. Can't help wondering why I wasn't given the rest of the results and the reference ranges.

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