Migraine with T3

[Caroline59]

Having bought myself some Thyroid S and tried it at a 1/4 of a tablet each day at 6am before breakfast at 8am. I got as far as day 3 and had the most awful head ache which lasted the best part of a week. I reduced my Activas from 150 to 125 before starting on the Thyroid S.

So bought myself Timerol, and after a months break again decreased my levo to 125 and proceeded as above on a 1/4 of a tablet. I did feel the benefit of this as my head cleared and my breathlessness disappeared by day 2. I started to feel well for the first time in a long time. However the following day, again a really bad headache which again lasted for days.

My Vit D, B12, Ferritin & Foliate are all optimal.

My TSH 0.597(0.27-0.4.20)

Free Thyroxin 20.17(0.12-0.22)

FreeT3. 4.89( 3.10-6.8)

Not sure where I to go from here

I was so good to feel almost human again for a couple of days.

Any advice would be most welcome.

[Clutter]

Caroline59,

If you can push through the headaches it may be worth persisting with the Tiromel. Adverse effects may resolve after 7-10 days. I don't think you need to reduce Levothyroxine dose because FT4 was within range.

[Caroline59 in reply to Clutter]

Thank you Clutter.

The headaches were so bad I took to my bed.

I’m pretty tough normally and battle through.

I hope I understood correctly?

Keep my Levo at 150 and add 1/4 of T3

[Clutter in reply to Caroline59]

Caroline59,

Yes, Levothyroxine 150mcg plus 6.25mcg T3. Maybe worth seeing whether you can halve the quarter to 3.125 with a scalpel or sharp knife and seeing whether that is more tolerable. If you can't tolerate the T3 you could try raising Levothyroxine dose to 175mcg instead as that will raise FT4 and FT3.

[Caroline59 in reply to Clutter]

Thank you Clutter

I think I will try the 1/8 and see how I go.

Not sure if i’ve got the wrong end of the stick, but could it be adrenal problems.

Never tested Cortisol.

[Clutter in reply to Caroline59]

Caroline59,

If adding T3 is triggering headaches I don't think thats likely to be an adrenal issue.

[Caroline59 in reply to Clutter]

Thank you Clutter

[silverfox7]

When I started on Thyroid S I stopped Levo. Don't forget that the Levo stays in your system for a while so as your Levo is decreasing then your NDT is increasing so you won't notice much difference.

[FIT2018 in reply to silverfox7]

Me too, and I was sick as dog with vestibular migraine for the first 36 hours on 2 x 1/2 grain. So I upped the dose to 2 pills and then 3, and bingo within a week, miracle...

[Caroline59]

Thank you Silverfox7

I am going to try again

[FIT2018]

I found levothyroxine caused my vestibular migraines. Just saying... I think you have read my post, I switched to Thyroid s and... I'm now convinced levo is bad for some people...... Good luck

[jamesal0]

Hi Caroline, Since you don't seem adverse to experimenting - I'd have a play with the NDT (Thyroid S ) by it's self. Maybe stop everything for 3-4 days then do 60mg per day, split the cap in half. Half in the morning and half for lunch. Chew them with food or you'll get acid reflux . If you last a month increase to 90mg , just keep doing this until you get the head ache back. Then you know where the top is and run just under that. It will change depending on your physical activity and the season (winter/summer)

J