I thought I would let you know what has been happening at Thyroid UK and where we are in the projects in our Strategic Plan (a plan of work that charities have to adhere to).
This has taken longer than we expected partly because I have had to take a lot of time off recently due to having two operations and recuperation from them. I still worked throughout most of my recuperation although not full time. However, I am now back at work full time and getting on with the job!
I have been working hard on writing new articles for our website and reviewing our current articles. This takes time because once they are written (by myself or our copywriter) they need to be proofread, edited, proofread again and then formatted to our brand.
I have been collating people’s stories, responses from MP’s, CCG protocols, NHS hospital trust protocols etc. and once I have analysed all of these I will be writing a report and contacting Jeremy Hunt and NHS England with a view to trying to get a meeting.
Thyroid UK works a lot behind the scenes to help thyroid patients. We are a small team and are here for people who have all kinds of issues i.e. newly diagnosed patients; patients who need a special order levothyroxine due to intolerances, people with subclinical hypothyroidism, people who need T3 or NDT, people with hyperthyroidism and people with related conditions such as B12 deficiency, Vitamin D deficiency etc. etc.
My mornings are taken up with helping people who send me queries via email, private messages on HU, Facebook and Twitter. This leaves me only a few hours per day for other activities such as discussions with trustees, the work a charity has to do to adhere to the rules and regulations of a charity, discussions with our advisers, fundraising so we can keep going, our member magazine, our e-news, keeping up with current research and articles etc. etc.
I hope that you can see that we are not lacking in our work to help thyroid patients and that you will support us so that we can change things.