I just thought I would write a post about what Thyroid UK plans are over the coming months in regard to T3 problem.
Thyroid UK has already been working to bring the problem of the extortionate costs and the non prescribing of T3 into the media and many of you may have already listened to the two radio interviews that I did.
On Thursday of this week on The One Show (7pm BBC1) there should be a piece about this topic. I travelled to Northampton for filming last week. Let's hope nothing happens to stop this being aired.
Thyroid UK is planning a targeted letter writing campaign and meetings with relevant people and bodies (first meeting with a pharma company is tomorrow) to try to ensure that people will not be taken off T3 and also to impress the authorities that some patients need to be prescribed T3.
I would ask that you try to be patient with us during this time. I work full time but my two staff, Louise and Charlotte, only work part time. There is only so much we can do in the time we have and the funding we have and at the moment much of our time (many hours) is spent dealing with queries from patients who need our help either by telephone, email, Facebook or Twitter.
Please bear with us while we try to get this work done. If you have already written to your MP or the BTA and received a response, we will be asking you to send a copy to us.
We will also be asking for case studies from people who felt really well on T3 but who have had this taken away from them. Please don't send us anything yet. We will be contacting everyone as soon as we are ready to start the campaign.
We hope to start working on the campaign next week (unless something else crops up that will take us away from doing this such as me having to travel miles for an interview that I think will help) including designing some template letters for people and instructions on what to do.
CEO, Thyroid UK