This is the first event of this kind.
Is someone here from Thyroid U.K. or anyone else who is a member of this group attending?
Seems vital a) to have someone to put our case there and b) to have a record of discussions and developments, for current and future patient knowledge and confidence in practitioners.
Of particular interest is the 11 am workshop on when to use T3/T4 combination therapy in hypothyroidism by Simon Pearce.
Are there any thyroid patient groups in Birmingham people here are aware of?
Looks like it’s aimed (exclusively?) at doctors/endocrinologists
Yes it is
But will have impacts / effect on the patient community
Oh yes ….and in an ideal world they would be interested in hearing patients lived experiences
T3/T4 combination therapy in hypothyroidism and Simon Pearce in the same sentence??!! He does not allow T3 at all for hypothyroid treatment, even although he is considered a leading light. If there is any research he is using, it won’t be his own and I suspect he will pooh poohing it. I would love to be a fly on the wall for this one. The man knows no shame. However I will be the first to acknowledge my mistake if he ‘turns his coat’.
😂yes I nearly chocked on my tea when I saw that.
I had difficulty comprehending it and then I nearly choked on my tea!
He knows what’s in our “best interests”!
The trouble is he thinks our best interest is in remaining unwell.
To register you need to show some proof of working for a scientific or academic institution or hospital.
I don’t see why anyone from here can’t go. It’s a public event. There is a fee to attend. As long as people pay, surely they can go?
£200.00+ and expenses. I am sure I would be dreadfully disappointed. He is certainly not worth it. However if I belonged to one of the ‘institutions’ I would happily go along and claim my expenses. Could be entertaining and no doubt better for most involved rather than reducing the NHS waiting list.
Please can someone add a link to where Simon Pearce is mentioned on the website? I can only see a general list for the day, and he's not on that.
thyroideducationday.com/pro...
Go to Programme .
expand the drop down menu for "Workshop A ~Benign Thyroid Conditions"
he's listed there.
Thank you!
I see that Kristien Boelart, one of the Birmingham academics running and organising the day, is a trustee of the BTF.
Her bio here, on their page, says she has a strong track record of advocating for patients:
TaraJR - would it be possible to reach out to Kristien and ask if there is the opportunity for a patient perspective to be delivered on the day?
Bottom line - Simon Pearce’s involvement as T3/T4 speaker on this day undermines the faith of thyroid patients in this event and in the work of doctors associated with it.
I wonder if doctors / others in the NHS have any idea how much the community of U.K. hypothyroid patients fear and dislike Dr Pierce, because of his actions to belittle and ignore them?
I'll look into it. Though I fear that patients' views won't be included/ or considered important enough
Is she at least aware of how controversial and hostile a figure Simon Pearce is, for us patients?
I wouldn't be too sure about that. She's more in his camp than not.
Has anyone yet done a petition, stating that the medical thyroid bodies have lost the faith of patients?
She's also taken over as BTA President, from Simon Pearce.Her expertise is hyper and thyroid cancer. She's not so good with hypo, and isn't a real T3 advocate.
Thanks for saying / delivering anything you can say
I have asked...
No thyroid medication since January 31st😳
[i]2022 ATA VIRTUAL Alliance for Thyroid Patient Education Health Forum[/i]25th May - is World Thyroid DayGroundbreaking news day for lupus patients is a great day for Thyroid U.K. and all of us 
British Thyroid Foundation London Support Group Meeting 26th November
