I have been signposted here from AbFab at the antisopholipid page as I have Hughes syndrome.
Here are my results from a few months ago
TSH 0.66 ranges 0.27-4.20
T4 Total 81.9. 65- 142
Free T4 13.99 12-22
Free T3 Reverse T3* 18
Reverse T3 18.74 normal over 15
And my discussion from the APS page
I feel like I only ever come on here when times are hard and I need support.
Brief overview 4 years ago was diagnosed with aps after collapsing. Allergic to Warfarin. In xarelto and 2 years on fragmin injections. Clot physically removed. Insides are stented and an I’ve filter was fitted for two years.
A year later pe , fragmin treated.
Further diagnosis of fibromyalgia
I have severe mood swings. On Prozac but have gained two stone. Family history of thyroid but nhs and private tests has coMe back as normal
The last option is now a hysterectomy. They have told me that this is the very last option available but I cannot see a way forward.
I cannot cope with the irrational thoughts and tempers.
On b12 injection every 3 months and vitamin D every month.
Diet paleo autoimmune which I have started
Marriage in complete tatters and my life feels ruined by Hughes!
I am also a integrative Therapist and have had CBT therapy.
I just need to know if anyone has been through similar or can see something I am missing?
what dispair you are feeling but reading your post I do feel like you that something has been missed. My instinct is that this is a Thyroid problem. I have personally seen for myself how "being in the normal range" can actually devestate many people's lives because those ranges are not necessarily good for that particular person and there is evidence starting to come out to support this.
When you say normal, would you mind letting me know exactly what that is? If you can put your results on here, all with the reference ranges, I could have a look.
The fact you say that there is a familiar link to Thyroid is also a clue. If you have a DIO2 defective gene then you will post normal results or be in range, albeit probably the low end, yet your body will not be converting T4 to T3 which is the active part you need to get to the cells.
I'm very perturbed that a major op is being suggested before every avenue has been gone down and apart from the mood and depression you don't talk of any other gyny issues that are effecting you. Castrating someone to control hormones would be a very drastic option and can have many other negative implications. It strikes me it would be taking a sledge hammer to crack a nut.
As Ros says you need to find the right Doctor who is prepared to get to the bottom of these things. Let's start with your Thyroid and see if it is the likely culprit as normal does not always mean that.