Hi All, I'm struggling to find anyone else having palpitations and ectopic beats etc etc etc on levo. Just wondering if anyone else is having these problems and if you tried switching to NDT or took beta blockers?
Bit of background... copied and pasted from another thread
I was diagnosed with Graves' disease early in 2017 when I came down with flu and had a raft of blood tests in A&E. My TSH was undetectable and my T4 and T3 were only slightly above the normal range but I was extremely symptomatic (tremors, rake thin, tachycardic, hypertensive, sweating etc etc). My endo started me on a really low dose of carbimazole and every time my T4/T3 came into the normal range he immediately dropped the dose. I have since read the guidelines and I now know that was the wrong thing to do. The result was 6 months of constant hyperthyroidism and lots of hospital admissions, I was eventually told to get rid of my thyroid and I gladly agreed, hoping to end the misery. In my endo's defence, I don't think he's ever treated anyone so sensitive to thyroid hormones, I reacted violently to a T4 of just 24 (12-19 normal range).
My thyroid levels have gradually improved over the couple of months since the surgery, I was overtly hypothyroid at the time of surgery to prevent thyroid storm (T4 was 8). My levo dose has been increased from 75mcg per day to 100mcg 3 days a week and 75mcg 4 days a week, he's just increased it again to add another day at 100mcg based on these levels:
T4 14 (12-19)
T3 3.7 (2.6-6)
Not great but I don't actually feel that tired, the problem I am having is that levo seems to be giving me heart problems, I am plagued with ectopic beats, tachycardia and sometimes full blown palpitations. I'm also hypertensive (140/90, pretty rubbish for a 50kg woman in her 30s). The palps and ectopics are always worse in the few hours after I take the levo. The endo rolls his eyes and tells me this is all in my head, which makes me feel pretty desperate as I cannot maintain any quality of life like this. I wondered if something like NDT would give me less heart grief, my endo won't prescribe tertroxin because he thinks my heart can't take neat T3... despite the heart issues being all in my head!!!
Any advice or anecdotes are very welcome at this stage, I'm feeling pretty hacked off at the dramatic decline in my quality of life.