I have sluggish gut muscles, tiredness, anxiety, jumpiness, cold feet and legs, thyroid swelling, weight gain, pins and needles in arms. Thank you for reading.
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tamaza7
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Your antibodies are high this is Hashimoto's, (also known by medics here in UK more commonly as autoimmune thyroid disease).
About 90% of all hypothyroidism in Uk is due to Hashimoto's
Essential to test vitamin D, folate, ferritin and B12.
Always get actual results and ranges. Post results when you have them, members can advise
Hashimoto's affects the gut and leads to low stomach acid and then low vitamin levels
Low vitamin levels affect Thyroid hormone working
Poor gut function can lead leaky gut (literally holes in gut wall) this can cause food intolerances. Most common by far is gluten
According to Izabella Wentz the Thyroid Pharmacist approx 5% with Hashimoto's are coeliac, but over 80% find gluten free diet helps significantly. Either due to direct gluten intolerance (no test available) or due to leaky gut and gluten causing molecular mimicry (see Amy Myers link)
But don't be surprised that GP or endo never mention gut, gluten or low vitamins. Hashimoto's is very poorly understood
Changing to a strictly gluten free diet may help reduce symptoms, help gut heal and slowly lower TPO antibodies
You must be feeling dreadful but welcome to the forum. Im one of the 10% who doesn't have antibodies but I do realise how that can be when you have a flare up. Hopefully things will settle more once you are stable with thyroid meds. It can take some time so patients is often needed but I'm sure with the help you have already received things will start to improve.
Always get into the habit of asking for the results and pleased to see you have included the ranges. These are very important as they differ from lab to lab so without them we should just be guessing. You may find it helpful to keep diaries of results, symptoms and whether things like diet affect you. I wish I had done this! If you look on the Thyroid U.K. Site, they run this forum them you will find a huge list of symptoms. It's around 300 but you won't get anywhere near that level but you make find you have Ines that you never would have thought of and your doctor may be even trying to sort one notcrwasliding it need s yourcthyriodxto be working properly. So it's a steep learning curve but shout out if anything worrying you or you don't understand. Start slowly building up your knowledge as you go along but read the info and keep reading and you will get into a system that works for you. We start low on thyroid medsto get our body used to them then increase every six weeks if blood tests indicate you need an increase. It takes 6 weeks to get a new dose into your system fully and at first you may not notice any change for a week to 10 days but you may find as you get nearer to the six weeks you feel things going downhill again but that is normal. It means you will most probably need another increase when you get your bloods done. But shout out if you are ever unsure of anything.
That is par for the course .You are allowed to become much sicker before the NHS does anything. Tell your GP that you have consulted NHS Choices that led you to Thyroid UK for advice and that with those results the advice is that you are clearly hypothyroid and you need levothyroxine.Ask for a trial.
You are below the range on the active hormone FT3 which is needed by every cell and above range on TSH ,produced by the pituitary gland ,which is high because it is trying to get the thyroid to work harder. FT4 is mainly a storage hormone that converts to the active FT3
Perhaps you should ask the GP to explainthe cause of your symptoms. He clearly knows nowt about thyroid hormones.
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