Autoimmune Hashimotos and thyroidectomy

[Asil737]

Sometimes I wonder if it would be best to have my thyroid cut out. Due to the continuous fluctuations of my thyroid. It’s like a rollercoaster and hard to treat. But I heard you will still have symptoms because of your antibodies

[greygoose]

Depends whether the antibodies are causing symptoms. I've never read anything scientific that says they do. If the thyroid is removed, the antibodies should disappear. Or so they say. Difficult to get any hard information on the subject.

The problem is, if you have your thyroid removed, and are permanently hypo, doctors still have no idea how to treat you. And, that is probably your problem right now - doctors don't know how to treat you. But, we would need more information to know.

Do you have any blood test results, with ranges, to share with us?

Is your doctor doing all the right tests or dosing by the TSH?

Have you tried gluten-free?

How long since your diagnosis?

Have you ever had an ultrasound on your thyroid?

[Asil737 in reply to greygoose]

greygoose , unfortunately I don’t have a copy of my labs. I’m seeing a functional Med doctor now because my Endo only wanted to look at TSH. My new one did the whole panel. My antibodies were like 38, TSH 5.7, my T3 was in range (I’m on cytomel) but my T4 was off he said (I’m on Levothyroxine). And my reverse T3 had doubled. He thinks my hypothalamus is injured? Or inflamed. I have chronic inflammation in my lab result. My estrogen,progesterone and testosterone are all low. I’m 36. We did have a roof leak. He said that caused mold and that could be affecting it too and yes, I eat an AIP diet. I feel so fatigued, it’s affecting me at work. I’m a nurse. I was diagnosed one year ago. Ultrasound showed a textured thyroid without nodules.

[greygoose in reply to Asil737]

If you are in the UK, it is your legal right to have a copy of your test results. Just ask for a print-out, they can't legally refuse. Because just saying 'in range' and 'off', tells us nothing, so it's difficult for us to help you.

But, obviously if your doctor was only testing the TSH, he was dosing by the TSH, and that is absolutely the wrong thing to do. And that probably has a lot to do with the fluctuations.

Not sure if that's what you meant, but a high rT3 has nothing to do with your hypothalamus. But, if your FT4 is over-range, that is more than likely the reason for the high rT3. You don't say how much of each you're taking, but reducing your levo and increasing your T3 will probably get rid of the high rT3 and make you feel better. A TSH of 5.7 is way too high, so you are undermedicated, and not converting well.

[Tinkermt]

I don't know what the answer is to that but I had half my thyroid removed because of suspicious nodules and it made my hashimoto's worse. I had the procedure done on May 26th of this year and they are still trying to get my meds right.

[brighter84]

There are many of us here who have had thyroid removal - in my case it was for Graves disease. That was 14 years ago and I'm still not right and still suffering so I'd urge you to find a different path. I know it's not easy though, but find anything you can do to reduce the inflammation in your body x