glad i joined: i have been taking thyroxine for... - Thyroid UK

Thyroid UK

140,930 members166,050 posts

glad i joined

deelcee profile image
8 Replies

i have been taking thyroxine for the past 20 years,have seen 2 maybe 3 endos and god knows how many gps and have never been told the following

take 1st thing on empty stomach and do not eat for an hour

when having tsh test do not take thyroxine for the preceding 24hrs

so where does that leave me? does it mean that all the tests i have had are wrong???

Written by
deelcee profile image
deelcee
To view profiles and participate in discussions please or .
Read more about...
8 Replies
SeasideSusie profile image
SeasideSusieRemembering

Deelcee

Those are patient to patient tips which most doctors won't know about or necessarily agree with.

The reason for leaving off Levo for 24 hours is that if you take it before your blood draw, as Levo peaks in the blood up to about 6 hours (I think) then you will get a higher FT4 than otherwise.

The reason for taking Levo on an empty stomach and leaving an hour before eating is so that it can be absorbed properly.

If you've been taking it differently for years, it very likely that you are being dosed appropriate for your own circumstances. How do you take your Levo and how do you feel?

deelcee profile image
deelcee in reply toSeasideSusie

either in the morning after breakfast or last thing at night on going to bed

deelcee profile image
deelcee in reply todeelcee

forgot to say mostly i feel rubbish.....no motivation,extreme tiredness,profuse sweating even when its cold, no libido and bone and muscle aches and pains

SeasideSusie profile image
SeasideSusieRemembering in reply todeelcee

Deelcee

Have you got your latest test results? You could be undermedicated. Post them, with reference ranges and say what dose of Levo you take.

Taking it before bed suits some members better, but you need to leave 2 hours after eating, 3 hours of a big meal, so that stomach is empty.

Bone and muscle aches and pains can be due to low nutrient levels, particularly Vit D. It would be a good idea to get them tested, they are often low in us Hypos:

Vit D

B12

Folate

Ferritin

If GP won't do them, Medichecks and Blue Horizon do fingerprick test kits to do at home.

deelcee profile image
deelcee in reply toSeasideSusie

thanks,i'm on vit 'd' replacement

i shall get the others checked after the holidays

SeasideSusie profile image
SeasideSusieRemembering in reply todeelcee

If D3 is being prescribed at 800iu daily, it won't really be enough to raise a low level. Do you know what your level was?

The Vit D Council recommends a level of 100-150nmol/L

deelcee profile image
deelcee in reply toSeasideSusie

sorry i dont know what the test level was

i am taking 2x 1000iu avititcol capsules daily

Marz profile image
Marz

healthunlocked.com/thyroidu...

The above link takes you to your previous post/thread. So now you know why your TSH is still so high and the FT4 is low in range - all because of the way you were taking your T4 - so the absorption was poor and you are feeling bad :-( Try taking the way others have suggested and hopefully your levels will improve ....

Not what you're looking for?

You may also like...

Does anyone else have a lot of breast pain? After having a hysterectomy at 45 I am now 66, so long past the menopause but get a lot of pain

in my right breast. I have had all the usual mammograms and even some emergency ones in between....
Trish profile image

Have I hashimoto's?

Hospital letter came this morning, the same consultant who does not recognise t3 conversion. He did...
rgraham196 profile image

Underactive Thyroid Gland

Hi all I was wondering in anyone could help me. I have had an Underactive Thyroid Gland for 3...
Jax122 profile image

Need help to finally get better!

Have suffered with this disabilitating illness for fifteen years now, probably longer but...
buzz123 profile image

Please help - I feel like I am losing myself thanks to my thyroid!

Hi All, I hope you are all well!! I was diagnosed with having a slight blip with my Thyroid back in...
FeelRuined profile image

Moderation team

See all
helvella profile image
helvellaAdministrator
Jaydee1507 profile image
Jaydee1507Administrator
PurpleNails profile image
PurpleNailsAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.