T3: Hi all Could someone please give me... - Thyroid UK

Thyroid UK

137,137 members160,814 posts

T3

12 Replies

Hi all

Could someone please give me information on how and we're to buy t3

My GP stopped it I feel dreadful havnt had any from September

I was taking 5mg. Three times per day

Thank you very much for any information

Read more about...
12 Replies
Marz profile image
Marz

healthunlocked.com/thyroidu...

Did you read the link posted for you in the above link - the one about the BTA ?

in reply to Marz

No but I will thank you very much

Clutter profile image
Clutter

Wildgeese,

Was your T3 originally recommended by an endo? Why did your GP withdraw your prescription?

in reply to Clutter

Yes it was GP said only private endo recommend it we don't perscribe anymore an to have bloods tested again new year

Thank you 😊

Clutter profile image
Clutter in reply to

Wildgeese,

If you're saying a private endo recommended T3 originally your GP should have referred you to NHS endocrinologist for confirmation of clinical need if GP was not willing to continue prescribing on the say so of the private endo.

You could write to your GP (cc your MP) and tell your GP that you believe your GP is in breach of the GMS contract by with-drawing treatment you have been told you need and did well on, and that you have felt unwell since it was withdrawn and would like it reinstated. Attach the BTA guidance for patients and GPs.

The BTA issued guidance that patients doing well on T3 should not have their prescriptions with-drawn. See FAQS for patients and GPs in british-thyroid-association...

CCGs do not have the authority to tell GPs what not to prescribe. Individual GPs, not CCGs, could be found in breach of the General Medical Services contract if they do not prescribe treatment patients have been told "they need".

bmj.com/content/358/bmj.j36...

The GPC has warned that GPs would be in breach of the GMS contract and could get into legal trouble by following the orders and refusing to prescribe patients treatments they have told them they need.

gponline.com/gpc-warning-ig...

CCGs are expected to do impact consultations with the public and stakeholders before implementing change. Failure to do so leaves them open to legal challenge so check whether your CCG did an impact consultation before advising your GP to withdraw T3.

mills-reeve.com/files/Publi...

Please sign the petition requesting better thyroid diagnosis, testing and treatment. change.org/p/itt-campaign-g...

in reply to Clutter

Thank you so much I didn't know any of this . Thanks again I will update but will be after Christmas as I won't get app until new year

SlowDragon profile image
SlowDragonAdministrator

Have you had vitamin D, folate, ferritin and B12 tested since T3 was stopped

If not make urgent appointment and INSIST they are tested

It's extremely likely they have crashed right out. This has happened for everyone else on here who had T3 stopped

Low vitamin levels stop Thyroid hormones working

You will need to improve low vitamin levels BEFORE restarting T3

If you have Hashimoto's you may also need to be strictly gluten free

Typical posts after T3 stopped

healthunlocked.com/thyroidu...

healthunlocked.com/thyroidu...

healthunlocked.com/thyroidu...

Prof Toft - article just published now saying T3 is likely essential for many

rcpe.ac.uk/sites/default/fi...

Thyroid UK are collecting evidence of malpractice due to removing clinically needed T3

Please consider sending a brief outline of this. How T3 improved you and the subsequent disaster since it was stopped. I would include the dire vitamin levels (assuming you have them) once you get test results back

thyroiduk.org/tuk/get_invol...

Come back with new post when you get vitamin results

in reply to SlowDragon

I havnt had any blood tests I am taking b vit plus iron magnesium etc but I feel like I'm drunk / hungover all the time

SlowDragon profile image
SlowDragonAdministrator in reply to

Insist on testing

Highly likely to have crashed right down, even with supplements

If you are taking vitamin B complex, or any supplements containing biotin, remember to stop these 3-5 days before any blood tests, as biotin can falsely affect test results

endo.confex.com/endo/2016en...

endocrinenews.endocrine.org...

in reply to SlowDragon

Thank you I will ring today to ask which will probably be a drama my toungue is killing me it's far to big but they think it might b lichen planus been referred to hospital god knows when il get app . Thanks again for your help

SlowDragon profile image
SlowDragonAdministrator in reply to

Low B12 causes large or swollen tongue

As is feeling drunk or dizzy

That's basic medicine a GP ought to know that

b12deficiency.info/signs-an...

Insist on testing of vitamin D, B12 folate and ferritin

in reply to SlowDragon

Ok thanks I will update ASAP thanks your all very kind to take time to help others 😊

You may also like...

T3

Within days I started to feel better and could not believe the difference. I started to feel almost

T3 raising reverse T3

today and I have also come across this information that taking too much T3 either at once or in...

T3

Rhodes, Greece. Can I buy T3 over the counter there please. Just. Yes or no will do. Any further...

t3

obtaining t3 from a reliable site (obtained from a member on this forum) I am ready to take it....

T3

was very helpful in giving me the info I needed to persuade an endo to give me T3. I forget how many