Please: Could anyone please explain what these... - Thyroid UK

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Please

21 Replies

Could anyone please explain what these results mean

I've had my t3 stopped by GP

Currently taking t4 100:75 alternate

T3 3.8 (3.1-6.8)

Ths 0.5 (0.27-4.20)

T4 26.3 ( 12-23)

I have hasimoto

Thanks for any help understanding what this men's

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21 Replies
humanbean profile image
humanbean

What dose of Levo and T3 were you taking before your T3 was stopped?

in reply to humanbean

75 t4 /10 t3

humanbean profile image
humanbean in reply to

So your doctor has taken away 10mcg T3 and replaced it with 12.5 mcg Levo.

There are so many things wrong with this.

For a start you've had your dose of thyroid meds reduced by the equivalent of 17.5mcg Levo. The removal of your T3 will make you feel awful. Reducing your dose overall will probably make you feel even worse. I'm going to guess and assume he has done this because your TSH was under the range and your Free T4 was over the range. But he seems to have completely ignored your very low in range Free T3.

What reason did he give you for removing your Free T3?

In your shoes I would suggest trying NDT, but either you would have to find an endo or doctor who would prescribe it for you privately, on a named patient basis, or you would have to buy your own online without a prescription. I'd prefer to buy my own to be honest.

Your doctor has done you no favours at all, whatever excuse he made up to fob you off.

in reply to humanbean

He said they are not allowed to perscribe it anymore

in reply to humanbean

Sorry he also said my results are satisfactory but I can't understand why ths is under

in reply to

Should I take more t4 . Sorry for so many questions I actually feel so depressed because of this I don't think I can stick this anymore my GP said I have panic disorder an that it's not thyroid . I don't want to go back to him he thinks I am done lunatic

Heloise profile image
Heloise

Hi Wildgeese, You aren't taking a very high dose of T4 and yet your are over range as you can see. Usually if you had been taking T3, your FT4 will go down which is all right but yours is still high. hmmmm And your FT3 is too low to feel well. The FT3 is the active form of thyroid hormone and needs to be well over 5.

You probably need the T3 because it doesn't look like you are converting well at all and that can be due to low ferritin or high cortisol or also low cortisol.

SlowDragon profile image
SlowDragonAdministrator

Who stopped T3 and why. Was it prescribed by endo? If so was it same one that stopped it

Read this guideline

british-thyroid-association...

And this - page 3 and 5-8

patients-association.org.uk...

Print out and take to GP if you want T3 back

Your FT4 is now too high and your FT3 too low

Ask GP to test vitamin D, folate, ferritin and B12

When T3 is stopped Vitamin levels often crash extremely low then stops thyroid hormones working

About 90% of all hypothyroidism in Uk is due to Hashimoto's

According to Izabella Wentz the Thyroid Pharmacist approx 5% with Hashimoto's are coeliac, but over 80% find gluten free diet helps significantly. Either due to direct gluten intolerance (no test available) or due to leaky gut and gluten causing molecular mimicry (see Amy Myers link)

But don't be surprised that GP or endo never mention gut, gluten or low vitamins. Hashimoto's is very poorly understood

Changing to a strictly gluten free diet may help reduce symptoms, lower antibodies slowly and help heal gut.

thyroidpharmacist.com/artic...

thyroidpharmacist.com/artic...

amymyersmd.com/2017/02/3-im...

chriskresser.com/the-gluten...

scdlifestyle.com/2014/08/th...

drknews.com/changing-your-d...

Low stomach acid can be an issue

Lots of posts on here about how to improve with Apple cider vinegar or Betaine HCL

thyroidpharmacist.com/artic...

drmyhill.co.uk/wiki/hypochl...

scdlifestyle.com/2012/03/3-...

Other things to help heal gut lining

Bone broth

thyroidpharmacist.com/artic...

Probiotics

carolinasthyroidinstitute.c...

in reply to SlowDragon

Oh I also take nexium two a day for hiatus hernia

SlowDragon profile image
SlowDragonAdministrator in reply to

Nexium is a proton pump inhibitor, these medications lower vitamins but B12 and magnesium especially

Low vitamins stop thyroid hormones working

You feel hypo and hyper at same time, blood test suggest you are over treated and dose gets reduced further

radd profile image
radd

Wildgeese,

Welcome to our forum.

It is worrying having T3 withdrawn & has happened to many members. When did this happen & how are you feeling ? ? ..

Your T3 levels are low & T4 high. If you are feeling hypothyroid, this indicates your meds are too low or not working. Many need additional T3 added to T4 (Levo) in order to achieve well being but there are other factors that might reduce the activity of your Levo working.

Are you thyroid antibodies elevated ?

Are you optimal in Vit B12, Folate, Vit D and Ferritin - all required in many for good thyroid hormone synthesis. Do you have gut issues (possibly caused by low thyroid hormone) that might impair nutrient/iron absorption ? ? ..

in reply to radd

Yes my antibodies were around the 600 mark . I feel so exhausted but cold then hot I've also put weight on I've went from 9stone 3 last year to 10.stone 4 weighed last week by nurse . Just don't feel right at all I take vit d vit b vit c milk thistle 14mg ferrous fumerate daily

Can't understand why ths is 0.5 would that not get high

SlowDragon profile image
SlowDragonAdministrator in reply to

Get vitamins tested, highly likely to be extremely low after T3 stopped

in reply to SlowDragon

Thank you very much for replys I Realy appreciate it

Thanks again

eeng profile image
eeng

There is a genetic test for a gene mutation that stops people from being able to convert FT4 to Ft3. I think it's called D102. If you have that mutation then they can't refuse you T3.

TaraJR profile image
TaraJR in reply to eeng

I'm afraid that they can refuse... I bought the DIO2 test, and it showed I do have the defective gene. But my hospital refused to reinstate my T3. I've bought some T3 now from Mexico, and will probably appeal to my CCG.

eeng profile image
eeng in reply to TaraJR

That's dreadful.

TaraJR profile image
TaraJR in reply to eeng

Yep! But now the BTA response to the NHSE consultation has been published, I have more ammunition for an appeal!

eeng profile image
eeng

You say you are taking Vitamin D. Have a look at SeasideSusie 's posts on Vitamins and how much you need to take to improve your levels.

Thank you to all that got back to me with great advice an help

I have to have my bloods all done in 6 weeks

I will post again I e been told by my GP to take 100 t4 3 days per week the rest 75

They Realy know what there at don't they 😩🙏

Thanks again

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