Thank you, I intend to ask for TPO and TG antibodies at my next appointment, they were previously done and shown to be elevated. I also have pernicious anaemia and GP did all these blood tests. I was told that the nurse left me a message on my mobile regarding these results and even though the GP surgery has my number I received no such message on my mobile at all. No diagnosis given. I take ferrous fumarate and cholecalciferol, magnesium and vitamin E
Thank you, no folic acid has been given since the GP said the folate was only just under range. Calcium was passed off as just below range as well and I have basically just been sent away from GP appointments as having some sort of health anxiety. Haematologist is monitoring pernicious anaemia
Thank you, I will ask for referral to endocrinologist next week. The haematology department used to write to me about my latest results but my appointment to see him keeps getting moved and as a result I haven't been seen since the start of last year when the 2015 bloods came back
Haematologist should be monitoring B12 and folate levels together. If folate is deficient B12 won't work.
Ranges are there for a reason. Below range is deficient. Your GP should prescribe 5mg folic acid for a couple of months to correct folate deficiency and calcium for a month or two to correct calcium deficiency. Folate and calcium levels should be monitored periodically to ensure they remain within range.
If TPOab and TGab wrere previously over range it confirms autoimmune thyroiditis (Hashimoto's). There's no point in repeat testing once you've had a positive result as antibodies will fluctuate.
If you didn't receive the message you need to contact your practice and tell them you didn't get the nurse's message and ask to speak to the nurse or GP about your results and diagnosis.
There is no cure for Hashimoto's which causes 90% of hypothyroidism. Levothyroxine treatment is for the low thyroid levels it causes. Many people have found that 100% gluten-free diet is helpful in reducing Hashi flares, symptoms and eventually antibodies.
I also have fluctuating cortisol results from saliva tests. One lot of results came back saying I had low cortisol, another one done 1 year later said I had high cortisol?
Sounds to me like you need up to date tests and to keep pestering for your Haematology appoinment.
You haven't had FreeT3 tested either have you.
Take your temperature first thing every morning and keep a record of any under 36.5 (remember to add one if taking underarm. If under tongue then as read.)
Keep your written list of all your symptoms with you. (add low temperature to list). Show list to every doctor you see. Keep on - politely but firmly - asking for your symptoms to addressed.
Medichecks Thyroid plus ultra vitamin or Blue Horizon Thyroid plus eleven are the most popular choice. DIY finger prick test or option to pay extra for private blood draw. Both companies often have money off offers.
All thyroid tests should be done as early as possible in morning and fasting. This gives highest TSH, lowest FT4 and most consistent results
Then you should have been started on Levothyroxine
If antibodies are high this is Hashimoto's, (also known by medics here in UK more commonly as autoimmune thyroid disease).
About 90% of all hypothyroidism in Uk is due to Hashimoto's
Hashimoto's affects the gut and leads to low vitamin levels
Low vitamin levels stop Thyroid hormone working
Then blood tests do jot reflect accurately how hypo you might be.
Poor gut function can lead leaky gut (literally holes in gut wall) this can cause food intolerances. Most common by far is gluten
According to Izabella Wentz the Thyroid Pharmacist approx 5% with Hashimoto's are coeliac, but over 80% find gluten free diet helps significantly. Either due to direct gluten intolerance (no test available) or due to leaky gut and gluten causing molecular mimicry (see Amy Myers link)
But don't be surprised that GP or endo never mention gut, gluten or low vitamins. Hashimoto's is very poorly understood
Changing to a strictly gluten free diet may help reduce symptoms, help gut heal and slowly lower TPO antibodies
As you have B12 injections its recommended to also supplement daily good vitamin B complex. One with folate
This keeps all the B's in balance and will help your low folate
If you are taking vitamin B complex, or any supplements containing biotin, remember to stop these 3-5 days before any blood tests, as biotin can falsely affect test results
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