What to do next?

[MPG1972]

Hi,

I have posted here a few times, so to bring you up to speed. I was diagnosed with Hashi's, the Endo put me on 150mcg straight away for 4 weeks, TSH went from 9.09 to 0.28, but I was feeling hyper. Changed to 125mcg, still felt hyper TSH still suppressed. Had a couple of ops (varicose veins, ACL), felt hyper, started with panic attacks - horrible ones requiring emergency help. Stopped taking Eutirox for 5 days then restarted on 75mcg, two and a half weeks ago. These are the results from a blood test last Saturday....

HDL COLESTEROL54 mg/dl 56.00 - 150.00 *Riesgo Moderado: 35 - 55

Alto Riesgo : < 35 LDL COLESTEROL98 mg/dl 1.00 - 129.00 Optimo : < 100

Moderado: 130 - 159

Alto : 160 - 189

Muy Alto: > 190 INMUNOLOGIAAnálisisResultado AnálisisUnidadRango de ReferenciaFuera del Rango

T3 LIBRE2.90 pg/ml 2.00 - 4.50

T4 LIBRE1.16 ng/dl 0.80 - 1.80

TSH ULTRASENSIBLE3.63 uUI/ml 0.50 - 5.00

ANTI TIROPEROXIDASA57.6 UI/ml 0.00 - 33.00 *

CORTISOL AM12.80 ug/dl 6.20 - 26.00 7 a 10 am

FERRITINA111 ng/ml 30.00 - 400.00

FOLATO4.90 ng/ml 3.00 - 25.00 Deficiencia moderada: 2.2-3.0

Deficiencia : <2.2 VITAMINA B12265 pg/ml 200.00 - 1000.00

My antibodies have gone down from 62.1 to 57.6. Would that be because I've tried to be gluten-free?

I have a meeting with my Endo tomorrow and was wondering what to do next....go up to 88mcg or 100? Do I need any supplements? Help and advice appreciated.

[Clutter]

MPG1972,

How long had you been on 75mcg before you had the blood test?

[MPG1972 in reply to Clutter]

Only 2 and a half weeks. The problem is I am going to Spain for 2 months - live in Peru.

[Clutter in reply to MPG1972]

MPG1972,

Your thyroid levels indicated undermedication before with TSH 3.36 and FT4 and FT3 low in range but 2 weeks is simply not long enough to tell whether 75mcg is enough or too much. Blood tests should be done 6 weeks after dose adjustments.

Thyroid peroxidase antibodies are positive for autoimmune thyroid disease (Hashimoto's). There is no cure for Hashimoto's which causes 90% of hypothyroidism. Levothyroxine treatment is for the low thyroid levels it causes. Many people have found that 100% gluten-free diet is helpful in reducing Hashi flares, symptoms and eventually antibodies.

chriskresser.com/the-gluten...

thyroiduk.org.uk/tuk/about_...

B12 and folate are low in range. If you have symptoms of deficiency in b12deficiency.info/signs-an... go to healthunlocked.com/pasoc for advice as they are the B12 and folate experts.

[MPG1972]

Hi Clutter, I was 0.28 on 150 and 125 but felt ill. The results are from 2 and a half weeks on 75. I realise this is not enough time, but I am going away. I also realise I need a higher dose of Levo. At the moment I feel pretty good but have low stomach acid. Is it advisable to jump from 75 to 100 or should I go to 88 or alternate 75 and 100. I don't want to repeat the hyper symptoms. Thanks!

[Marz in reply to MPG1972]

Clutter will not have seen your reply as you need to click onto the Green Reply button 😊😊

[Clutter in reply to MPG1972]

MPG1972,

The reason why you tested after 2.5 weeks doesn't change that it was premature. TSH 0.28 doesn't indicate overmedication so I don't know why you felt hyper.

I would increase to 75/100mcg alternate days.

[silverfox7]

I think the main problem is that you were put on such a high dose and your bodies, quite naturally didn't like it. I would stick with the dose you are on and if you can't retest when you have been on it 6 weeks postcagain and tell us how you are feeling and we may be able to make suggestions depending how you are. Ideally though it would be better to try and get tested where you are at that point. May be a hospital would help you or if you are going to someone you know they may be able to arrange something for you.

[MPG1972]

Hi again, saw my endo today. Going to move to 75 and 100mcg on alternate days. She also has suggested 0.5mg folic tablets, B12 sublingual and 1g Omega 3 capsules. Should I start taking all of this at once or gradually introduce? I'm not very good with this, just a 45 year old bloke who had never heard of Hashimoto's! I think the extra Eutirox will certainly bring down the TSH and increase the Free T3 and 4, whether it is enough ultimately only time will tell. I think it is important to give myself time - everything has been too much of a rush. Thanks again.