Vit and min levels: hi I have hashimoto disease... - Thyroid UK

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Vit and min levels

Chaylee profile image
7 Replies

hi

I have hashimoto disease

taking ferrous fumarate and 800iu vitamin d

thank you

FERRITIN 21 (15 – 150)

FOLATE 2.2 (4.6 – 18.7)

VITAMIN B12 183 (180 – 900)

VITAMIN D TOTAL 25.8 (25 – 50 DEFICIENT)

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Chaylee
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ITYFIALMCTT profile image
ITYFIALMCTT

Were these NHS tests and do you have an appointment booked with your GP to discuss them?

How much ferrous fumate are you taking and for how long?

Likewise the vitamin D which is just out of the severely deficient category and into the bottom of the 'deficient' category? But SeasideSusie 's replies are full of suggestions for appropriate products and dosages to correct a level like yours (I'll edit an example in if she doesn't see this).

Your vitamin B12 is scraping the bottom of the range and your folate is low. Do you have any symptoms of B12 deficiency? Read some of the pinned posts here and see if any strike a chord with you. You might want to hold off on supplementing folate if you don't yet know the reason for your B12 level. healthunlocked.com/pasoc

Chaylee profile image
Chaylee in reply toITYFIALMCTT

thank you

NHS tests

appointment with GP tonight to discuss

taking 3 ferrous fumarate a day and vitamin d since 2013

i have symptoms like memory loss pins and needles constipation fatigue muscle spasms heavy periods tinnitus dizziness but not sure if b12 related

ITYFIALMCTT profile image
ITYFIALMCTT in reply toChaylee

Scroll down to see SeasideSusie 's suggestions about vitamin D levels similar to yours: healthunlocked.com/thyroidu...

Plainly, that level of vitamin D3 is doing nothing to bring up your vitamin D levels nor is the ferrous fumarate getting the job done - and SS has some suggestions about that as well.

Do read up about the B12 and folate on the link that I gave - and maybe post there to ask what you might need to discuss with your GP?

SeasideSusie profile image
SeasideSusieRemembering

Chaylee

FERRITIN 21 (15 – 150) taking 3 ferrous fumarate a day and vitamin d since 2013

You absolutely must discuss this with your GP. 4 years of supplementing and you're still at the bottom of the range. There is obviously something going on, absorption issues need to be looked into.

I would have thought that by now you would have had an iron infusion. Ask about that. It will bring your level up within 24-48 hours so that's a start.

As you're taking 3 x FF daily, have you been diagnosed with iron deficiency anaemia? If so you should have seen a haematologist and should be monitored, and some haematologists give repeat iron infusions if ferritin drops below 50 again. Talk to your GP about this and ask for a referral if not already seeing one.

For thyroid hormone to work ferritin needs to be at least 70, preferably half way through range.

**

FOLATE 2.2 (4.6 – 18.7) VITAMIN B12 183 (180 – 900)

You are folate deficient with very low B12. Check for signs of deficiency here b12deficiency.info/signs-an... then go and post on the Pernicious Anaemia Society forum for further advice healthunlocked.com/pasoc quoting your folate, B12 and ferritin results, any signs of B12 deficiency you may be experiencing, the fact that you have been supplementing with iron for so long and your level is still dire, etc. They are the experts and will guide you so that you know what to ask your GP. I expect you will need testing for Pernicious Anaemia and may need B12 injections.

**

VITAMIN D TOTAL 25.8 (25 – 50 DEFICIENT) 800iu vitamin d

You are 0.89 away from severe deficiency. Point this out to your GP.

800iu D3 isn't going to ever raise your level, you need loading doses. It is hardly a maintenance dose for someone with a reasonable level.

See NICE treatment summary for Vit D deficiency:

cks.nice.org.uk/vitamin-d-d...

Treat for vitamin D deficiency if serum 25-hydroxyvitamin D (25[OH]D) levels are less than 30 nmol/L.

For the treatment of vitamin D deficiency, the recommended treatment is based on fixed loading doses of vitamin D (up to a total of about 300,000 international units [IU]) given either as weekly or daily split doses, followed by lifelong maintenance treatment of about 800 IU a day. Higher doses of up to 2000 IU a day, occasionally up to 4000 IU a day, may be used for certain groups of people, for example those with malabsorption disorders. Several treatment regimens are available, including 50,000 IU once a week for 6 weeks (300,000 IU in total), 20,000 IU twice a week for 7 weeks (280,000 IU in total), or 4000 IU daily for 10 weeks (280,000 IU in total)."

Each Health Authority has their own guidelines but they will be very similar. Go and see your GP and ask that he treats you according to the guidelines and prescribes the loading doses. Once these have been completed you will need a reduced amount (not a paltry 800iu) to bring your level up to what's recommended by the Vit D Council - which is 100-150nmol/L - and then you'll need a maintenance dose which may be 2000iu daily, it's trial and error so it's recommended to retest once or twice a year to keep within the recommended range. You can do this with a private fingerprick blood spot test with City Assays vitamindtest.org.uk/

There are important cofactors needed when taking D3

vitamindcouncil.org/about-v...

D3 aids absorption of calcium from food and K2-MK7 directs the calcium to bones and teeth where it is needed and away from arteries and soft tissues where it can be deposited and cause problems.

D3 and K2 are fat soluble so should be taken with the fattiest meal of the day, D3 four hours away from thyroid meds.

Magnesium comes in different forms, check to see which would suit you best and as it's calming it's best taken in the evening, four hours away from thyroid meds

naturalnews.com/046401_magn...

Check out the other cofactors too

**

Don't underestimate how dire these results are and that they need addressing, it is particularl important that you get advice from the PA forum.

SlowDragon has information and links about gut and absorption issues that are connected with Hashi's which will help.

Chaylee profile image
Chaylee in reply toSeasideSusie

thank you

discharged from haematology this year despite continuing iron anaemia

SeasideSusie profile image
SeasideSusieRemembering in reply toChaylee

Ask your GP to sort this out or refer you back to haematologist.

SlowDragon profile image
SlowDragonAdministrator

Your antibodies are high this is Hashimoto's, (also known as autoimmune thyroid disease). About 90% of hypothyroidism in UK is due to Hashimoto's.

Hashimoto's very often affects the gut, leading to low stomach acid, low vitamin levels and leaky gut.

Low vitamins that affect thyroid are vitamin D, folate, ferritin and B12. If they are too low they stop Thyroid hormones working.

In part these are too low because you are probably on insufficient dose. What are your thyroid test results

But also it is often necessary to change to a strictly gluten free diet may help reduce symptoms.

thyroidpharmacist.com/artic...

thyroidpharmacist.com/artic...

amymyersmd.com/2017/02/3-im...

chriskresser.com/why-changi...

scdlifestyle.com/2014/08/th...

Low stomach acid can be an issue

Lots of posts on here about how to improve with Apple cider vinegar or Betaine HCL

thyroidpharmacist.com/artic...

Other things to help heal gut lining

Bone broth

thyroidpharmacist.com/artic...

Probiotics

carolinasthyroidinstitute.c...

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