In Limbo. Help on old test results up to date? - Thyroid UK

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In Limbo. Help on old test results up to date?

Sallybones profile image
5 Replies

Hello again,

Hoping Diogenes or Greygoose could be of help?

I posted my thyroid test results for August a few weeks ago while waiting for a re-test and got some very helpful replies. A couple suggesting a possible pituitary problem. Just had the re-test and still waiting for FT3 result (done at a different lab).

My TSH had dropped a bit and so has my FT4.

Then I found my old test results which I hope have uploaded (not done it before) and are understandable. FT4 in August was noted as below range borderline and in October noted as abnormal. Both tests were No Further Action Required! However I think my GP will consider what to do when the FT3 result comes back.

I had brief T3 treatment in 2003 I think, but it was stopped when I was back to 'normal'. Not had any thyroid treatment since then.

I just wondered if anyone thought by looking at these results whether I may have had a thyroid or poss pituitary problem for some time - or not?

I have lots of the symptoms and generally my life and body have dwindled to a halt since 2003.

I have Osteoporosis and Cervical Osteoarthritis, spinal probs, neuralgia, pins and needles, tingles, plus too many symptoms to mention. Had Uterine Cancer and hysterectomy 2012. Had the usual fibro, CFS thrown at me. I self inject with B12 and good doses of D3, Magnesium and other stuff. Have leant a lot because I've had to push for tests and DXA scans but would appreciate some thoughts on these results.

cheers SallyB

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Sallybones
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Kell-E profile image
Kell-E

I think you got some good replies in your other post. These labs only support what others were saying. Central/secondary hypothyroidism is certainly a probability. T4 consistently low/lowish and tsh happy. Body not happy.

I was in your situation as far as test results. Low T4 and happy tsh. It simply means that your tsh/pituitary is happy to kill you off...I got lucky....they thought I had cancer and took my thyroid out. Now, no doctor is happy if my levels are what they used to be...at which time they were deemed perfectly normal.

Do some research. Take control of your situation.

Sallybones profile image
Sallybones in reply toKell-E

Hya scottbnk thank you so much for replying. Yes the previous replies were really very helpful and I've done a lot of reading and research for so long but just needed a bit more reassurance really before I see my GP again, so that I'm more confident in how I'm going to approach her. My brain doesn't function well any more.

I've had lots of 'battles' with them and if you've had depression even in the distant past that labels sticks, ie it's all in your head.

Even the endocrinologist I saw earlier this year was only interested in my osteoporosis, totally not interested in thyroid, but my previous cancer experience taught me to question the 'experts' or I woudn't be here now.

Your excellent explanation in a nutshell, has really helped confirm what I was thinking.

cheers SallyB

Kell-E profile image
Kell-E in reply toSallybones

Yeah, you've got it right. Don't let them poo-poo you. I wish I had been as old and wise back then. But then I would be even older now, so never mind, lol.

Seriously though, they try to call everything depression. But don't forget that depressions is a symptom of hypothyroidism.

Stick to your guns and if they don't listen find someone who will. Or medicate yourself because that is really the only treatment for central hypothyroidism unless your other pituitary functions are off.

If you've learned anything here it should be that GPs and Endos are clueless in most cases dealing with thyroid function.

You go girl!

Kell-E profile image
Kell-E in reply toSallybones

Oh, and be prepared for 'your numbers are all in the normal range'. Remind them that you have symptoms and those numbers may not be right for you.

Sallybones profile image
Sallybones in reply toKell-E

will do and thanks scottbnk.

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