Hello Everyone, I have read your posts with interest. I developed Hashimoto's Disease at the age of 16. I live in Brighton. For the past 16 years I have been taken a combination of T4 and T3. Last year the local CCG has made a decision to stop prescribing it and no GP or Endocrinologist it at my local Hospital seems to be want to prescribe it, however I have heard that some people in London are still getting it on the NHS.
I came off the T3 last Summer and my health and wellbeing deteriorated both physically and mentally. I have a history of Depression.
I restarted the T3 this year as I still had some left and felt so much better. My Pyschiatrist supported my GP with many an Individual Funding request to the CCG, which the CCG has declined and has stated my case is not 'exceptional'. I asked to be represent at the Panel Hearing to represent myself, but they said a decision had already been made! I wish they would listen to the patients!
My Pyschiatrist has issued me with a prescription of T3 and I am waiting to see whether my Pharmacy can get it in. The Manager seems to think he will be able to get it (fingers crossed).
The CCG say I can appeal the decision, but a further Panel only considers if the decision was made fairly in accordance with their principles and doesn't consider any new evidence. I understand there is a further right to appeal.
It is very frustrating, for now my Pyschiatrist says he will continue issuing prescriptions until I see him next and then we can develop a plan.
I am so pleased I have found this Pyschiatrist, someone who understands. He advised T3 came out very favourably in the STAR D study in America and he thinks it will be becoming more back into use and Pyschiatrists use it to help depression in patients that don't have a diagnosis of a thyroid problem.
We have a diagnosis of a thyroid problem and still can't get it!
I am concerned about what happens if the Pharmacy cannot get it in stock and why can I buy it from abroad, with or without a prescription. I would be grateful if any one has any advice.
It is such a battle, especially when it is our own wellbeing at stake.
I wish you all good luck on this journey and so happy to have found this forum, we are in this together!
Best Wishes to you all