Good morning all, been to see the specialist and now have to go for an ultrasound on my thyroid and they're going to take nodule samples.
On the plus side I'm staying on Liothyronine until at least Christmas. She told me that in the south of England it's getting almost impossible to get hold of it, but here in Blackpool not too bad at the moment. They are though having a little chat about it soon and then they'll inform the patients what will happen.
There is apparently some serious side effects of Liothyronine which is why they're trying to phase it out and as there's no actual proof either one way, or the other that it helps people it's probably very likely it will go! Although apparently people like me who are only one in every thousand that have an enzyme deficiency will be kept on it and monitored.
She said it's basically a poison and whilst I'm on it my TSH levels, or is it THS, will be unreadable. It causes irregular heart beat and blood clots. Causes strokes and heart attacks. But can be controlled by beta blockers and blood thinners.
Question being, is this just a ruse, or is it an actual fact? I'm erring on the side of ruse due to cost. Although I'd not be surprised if it was true. All I can say is that the 7 days I was not on Liothyronine were an absolute nightmare.
My other question is what should I prepare myself for with the ultrasound and nodule samples. She's ordered these and since I missed the seven days of Liothyronine my thyroid is now a little pronounced and my voice has changed slightly, plus I have a stiff neck on my left side.
I'm not going to google as by the time I've finished that I'll probably need my head cut off!! 😂
Thank you all I know at least one of you will know.