I'm new to this community. At my wits end. I have B12 levels of 397 (480 in 2016), Hashimoto thyroiditis, Reynauds, and on synthroid and estrace. Also diagnosed with low platelets and low calcium. I have tingling and numbnesss in hands and feet and now arms. Itchy back (dermatologist said it's nerve related no rash) for several years. Sometimes get nose bleeds, had dry mouth, burning tongue and fatigue on and off. Hair loss, brittle nails and dry skin. I've also had little red rashes and sometimes bruise easily and cuts take a while to heal. A year ago, I started having a bit of urinary incontinence which is Scary. Had a hysterctomy 4 years ago which I thought might be cause but urologist said no and gave me meds which I didn't take
My family doctor says that I'm within the "normal" b12 Levels. She also conducted a neurological assessment and says I'm fine. I have suffered from vertigo, my eye sight gets a bit fuzzy and have floaters every so often. Feel confused sometimes although could be because I'm stressed by this. Mid 50s and otherwise healthy. All my blood work has ruled out inflammation or cancer, no diabetes, no lupus. So I have this neuropathy and I'm very worried because I feel I'm not being heard. She wouldn't do other tests and had to beg her to do vitamin tests. when I told her my b12 levels would be considered low in Japan she dismissed and said that equipment could be different and in canada it's different. I would appreciate your advice. Worried about permanent damage and think B12 shots might help.
my B12 was 480 last year and it is 397 as of last week, and i have some very clear symptoms namely tingling in my hands/feet and arms that is constant, plus itchy skin, etc. Classic neuropathy symptoms. I have read that on Mayo Clinic site that patients with B12 levels between 150 and 400 ng/L are considered borderline and should be evaluated further by functional tests for Vit B12 deficiency and further testing of MMA levels. Plus my platelet count has been as low as 129 and has been steadily decreasing. Thanks
But I wonder if this is all caused by Hashimoto which I have. My TSH is 3.07, T4 free 16 and T3 free 3.6. I just spoke with my Family Doctor and she said my thyroid condition has nothing to do with my current symptoms. That my thyroid is fine and will not refer me to an endocrinologist I'm on synthroid .088 mg. I don't think it's enough. My doctor dismissed me today when I said I wanted to see an endocrinologist. She said that because I already have hashimoto, there's not much an endocrinologist would do differently.
Would welcome your thoughts or advice.