Lyme disease-help groups?: Hi, I know there are... - Thyroid UK

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Lyme disease-help groups?

NatChap
NatChap
7 Replies

Hi, I know there are quite a few folk on here who suffer with Lymes Disease and I was wondering if there is a forum on health unlocked specifically for sufferers or any other online help groups? I'm not asking for myself but for a family member.

Thanks in advance

Nat x

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Clutter

NatChap,

I think there are. Click on My Communities on the HealthUnlocked bar at the top of the page and select +Browse Communities and type "Lyme" into the title search and hit enter.

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NatChap
NatChap
in reply to Clutter

Thanks Clutter, just tried that and unfortunately there isn't one. It comes up in lots of other groups though so I might still recommend she checks it out x

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Hidden
Hidden

NatChap best place is probably lymediseaseuk.com and they have a closed Facebook group. They also have regular meets in different areas, I haven't yet attended one as the nearest was held in a city centre pub which definitely didn't appeal.

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NatChap
NatChap
in reply to Hidden

Thank you, I will let her know :-)

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cwill

There is a chronic Lyme summit coming up. Are you aware of it? I will find the link if you are interested.

Also an aside I know but read email re new test for Lyme that is proving way more successful: they ultrasound certain key points e.g. Spleen, and then do urine test and are finding that the ultrasound dislodges the bacteria so are found in urine. Obviously in the USA but I thought that a more reliable and useful test was a step forward.

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NatChap
NatChap
in reply to cwill

Thanks, I will pass the info on :-)

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cwill
cwill
in reply to NatChap

chroniclymediseasesummit2.com

Dr Klinghardt is the one talking about using ultrasound in testing and his talk on the summit is about testing.

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