I'm so happy to have found this forum! I've spent quite some time reading through previous posts and the advice/support is amazing. Decided it's time to see if anyone can help me with my first post.
I have been experiencing symptoms of hypothyroidism for over 5 years now - weight gain, fatigue, aches and pains - and the rest! Like many of you, my blood test results are always considered 'normal' in terms of my thyroid. I know that my health is far from normal - I have gone from being a slim, active, positive person to someone whose life revolves around napping!
I have previously seen an endocrinologist which wasn't a positive experience - they confused me with another patient and in a letter to my GP said that I was a smoker - completely incorrect. When I pushed, they did do a thyroid ultrasound which they said was normal. I have had different feedback from different drs - some say I have a goiter, others insist I don't.
Out of sheer desperation, I recently paid for a private blood test via Medichecks as my G.P would not do the full range of tests that are needed to identify potential thyroid issues. Below are the results from this test (underlined) and previous tests over the last few years (separated by /) The reference ranges are those from my recent Medichecks test (underlined) and the others are those used by my G.P:
TSH: 0.668/0.35/0.70/0.90 (0.27 - 4.20 / 0.35 - 5.0)
Free t4: 15.05/15.5/14.5/13.2 (12.00 - 22.00 / 9.0 - 21.0)
Total t4: 144.6 (59.00 - 154.00)
Free t3: 5.06 (3.10 - 6.80)
Total t3: 2.2 (0.9 - 2.5)
Reverse t3: 22 (10.00 - 24.00)
Reverse t3 ratio: 14.97* (15.01 - 75.00)
Thyroglobulin antibody: 10.460 (0.00 - 115.00)
Thyroid peroxidase antibodies: 17.39 (0.00 - 34.00)
Vitamin B12: 1476/708 (140.00 - 724.00) - I had 3 monthly B12 injections a few days before!
Folate (serum): 6.55 (3.89 - 26.80)
25 OH vitamin D: 130.1/25 (50.00 - 200.00) - on oral supplements
CRP: 11.4/31/35 (0.00 - 5.00 / 0 - 10)
Ferritin: 64.71/42 (13.00 - 150.00 / 15 - 200)
Albumin: 34/32 (35 - 40)
The only result that Medichecks really flagged up (apart from my raised CRP which is an ongoing, unexplained issue) was the FT3/rt3 ratio. Their feedback states:
'Your FT3/rT3 ratio is low which could suggest that you are not getting sufficient free triiodothyronine (FT3) into your cells. There is currently little scientific research into the FT3/rT3 ratio, but some experts believe that this could lead to symptoms of hypothyroidism (slow metabolism) even though your thyroid levels are at normal levels.
You may wish to discuss these results with your GP although you should note that it may be difficult to get advice and treatment for elevated rT3 or an abnormal ratio through conventional channels.'
I have shared the results with my GP who won't acknowledge them - she tells me this is outwith her area of understanding and that she doesn't need to act on private results - if the NHS don't do the tests, the NHS won't treat the findings. I was quite upset as she suggested I should perhaps stop seeking answers re my tiredness and other symptoms. She did agree to a referral to endocrinology but phoned me a few weeks later to say that my request for an appointment has been refused.
Apologies for the lengthy email but I'm hoping that by giving as much information as possible, someone reading this may be able to help. You may look at my results and feel that they are normal and that's okay - it's better to know either way to be able to continue to try to find a doctor willing to help me in some way or to consider what else may be causing my symptoms.
Thank you for reading!