I am a 32yo female who was finally diagnosed with hypothyroidism in 2010 after years of symptoms (weight gain, excessive thirst, debilitating fatigue, depression, anxiety, severe constipation, swelling of hands and feet, sensitive to cold, dry skin & nails, hair falling out, no period). I trace my issues back to when I started a high oestrogen birth control pill at 18. I was on it for a short time and when I came off, I stopped cycling naturally and thyroid symptoms slowly started to pile on. Doctors treated me with birth control pills to get a cycle until I took myself off completely. When I was diagnosed my TSH and T4 were within normal, but I had low T3. I started treatment with NDT and feel like I got my life back.
I recently moved to the UK from the US and have had to switch to Levothyroxine because my GP won't prescribe NDT. After 3 months of treatment, my symptoms came back and my period stopped. Luckily he tested my T3 and it had dropped again. He did start me on 15mcg of Liothryonine 3x daily which made a world of difference and my period came back. It is a year later and I am once again struggling with fatigue and thirst and intermittent periods. This might be linked to my highly stressful job though as I feel better on weekends/holidays. I've stopped drinking caffeine which has also helped reduce symptoms of fatigue and thirst.
I recently switched to a female GP and she referred me to an endocrinologist to see if there was anything else going on as we start to try for a baby. She was also concerned as my TSH is suppressed (has always been since starting tx). The trip to the Endo was horrific and I've been in tears/panic since. He rolled his eyes at the mention of T3, questioned that I ever had a thyroid issue in the first place because my TSH and T4 were within range T3 wasn't too far under the norm. Like so many doctors, he started talking about antidepressants and ways to manage stress (I'm already working on that).
I am trying to find support in the area that will treat ME as a person and prescribe based on my symptoms, not just my numbers My GP seems supportive so I am hoping she will work with me and not against me despite this man's report/recommendations, but I am afraid she'll go with the "expert." I wanted some input from other members on here:
1) Does anyone know of good private endocrinologists in the London/Windsor/Bracknell/Reading area who would treat T3 and prescribe NDT?
2) For those on NDT, are your T4 and T3 both in range? What about TSH
3) Can anyone else link their struggles back to a birth control pill?
4) Does anyone else have a suppressed TSH? Some say that's the goal, others say it indicates over treatment.
5) We are hoping to try for a baby soon and I'm scared about my thyroid and pregnancy. Any tips?
6) Is it worth getting the gene test for DIO2 if my labs consistently show low T3 despite adequate T4? (indicating issue converting)
Right now I am on 100mcg Levothyroxine and 20mcg of Liothyronine (10 first thing, then 5mc at 11:30 and 5mc at 3:30). I do think I am slightly over treated but would like to drop my T4 meds first and keep T3 as my main treatment. I think I also struggle with reverse T3 and that I have the DIO2 gene. My most recent labs were the following (note I took my medication that morning)
TSH - <0.02 (0.27-4.2)
Free T3 - 6.1 (3.9-6.7)
Free T4 - 15.3 (12-22)