Not posted in a while. I guess I've been trying to get on with life. This will be my 16th year trying to live with this condition and it never seems to get any easier. After many years of trials and tribulations I finally settled on taking T3 only. It would take me way too long to tell you my story but to say I've been through hell wouldn't be an exaggeration in my estimation.
Been through the myriad of doctors private and otherwise. Have been made to jump through hoops time and time again to try and obtain a replacement hormone which is the only thing that will allow me some assemblance of life, some functioning ability to be able to hold down a job and keep a roof over my head.
I found a Private GP 4 years ago who was willing to prescribe T3 Cynomel by Sanofi -aventis which happens to be the ONLY brand of T3 I can tolerate. That enabled me to get back to work after many years claiming benefits. Today she informed me she is no longer willing to prescribe...
Now that in itself didn't even come as a surprise . I knew it was coming one day and that I would find myself in the same distressed and panicked state as I have found myself so many times before. It's the way in which she (Private GP) did it.
I emailed her for a repeat prescription start of the Year. She replied the next day saying she would issue it, no problem. I breathed a sigh of relief...Following day I receive another email from her. No, she cannot give me a prescription without seeing me as it had been so long.. I thought ok, what choice do I have but to shell out money for a consultation, as long as I get prescription.
So, knowing the precarious state of affairs with 'thyroid hormone prescribing' I decided to email her first to preempt any problems. I said I would be unwilling to attend a consultation unless I was certain she was willing to keep prescribing the Cynomel for me. I receive an email back with her stating " yes of course I can do that." It's just that it had been so long since she had seen me last.
So nearly three weeks ago now, I take an hour and a half bus journey in the most horrendous weather..it was blowing a blizzard that day. I even dragged my poor daughter with me to keep me company. I saw the GP. She did mutter something about the GMC clamping down and then says she'll need to do a blood test. Again, I didn't want a damn blood test, but if it meant getting my prescription....
So, normally what happens is that she hands in the prescription to a Pharmacy down the road from her practise and they post it out to me. This has been the case for the last 4 years. After a week and a half, and receiving no call from the Pharmacy I emailed her in regards to the prescription. She ignores my email.
So I then tried emailing again this morning. I told her I was desperate as I had very little meds left , and this evening I get a reply from her. She tell me she can no longer take responsiblity for prescribing the Cynomel for me as it is a 'unlicensed medication' and the Head Pharmacist confirms this. Really? Well why has she been prescribing it for the last 4 years and why the hell did she get me to attend a consultation under false pretences leaving me completely out of pocket. I am just sickened. I don't even work full time hours, and am on the minimum wage. Oh, and a single mum!!!
So let's see..(Bus fare- £40. Taxi to+ from GP practise-£20. Fifteen min Consultation-£60. Blood test- £60. Prescription cost-£20 Total= £200 for absolutely nothing. She has the audacity to tell me she will return my £20 cheque for prescription. I paid that separately and the rest on my bank card. I want the rest!
I will now have to spend days trawling the internet, looking for Private doctors again, and then have to come up with hundreds of pounds to cover costs, because it looks like a trip to France is next. I have no medication left either. I just don't wan't to play this game any more. My heart beats heavy...When will it stop?