I have a GP apt forthcoming and I want some advice about what to ask and what to say?
After about 7 years of being ill following hemithyroidectomy surgery, I had blood tests at GP that came back normal for vitamin B12 and a bit low but still in (NHS) normal range for folate.
I had a range of growing symptoms. Gasping for breath, breathless up hill, even small slope, tachycardia, constantly yawning in the afternoon, joint/muscle pain from head to toe, anxiety and unexplained acute pain and svere pain at one point in my jaw, an abscess, cognitive disfunction a numb hip, back pain, utter misery and inability to cope with work and life.
I saw several GP's, a cardiologist and 2 endocrinologists and nobody had any suggestions except to take nurofen or antidepressants or see a shrink. I saw on this forum about vitamin B12 so even though my blood tests came back normal I took methylcobalamin 500mcg along with a B multivitamin. I was cautious but began to feel a bit better. Then I took Methylfolate 400mcg for a couple of months and felt a bit better. A while ago I stopped the methylfolate and increased to 1000mcg of methylcobalmin and felt a lot better. Then I increased to 1500 mcg of methylcobalamin and I'm returning to the land of the lliving. When I ran out of B12 vitamin I felt terrible very quickly and my face kind of scrunched up so that people thought I looked sad and miserable and people I didn't even know commented on it.
How much methylcobalamin is too much? Is it the right form of vitamin B12 to be taking? What should I ask my GP? Do I need to keep buying pills and what if I run out? Is this a temporary problem and why didn't my blood test show any problem? I've got so many questions to ask, can anyone help me? I'm worried that I will not taken seriously as for so long I feel I've been treated as though I was a hypochondriac coming up with strange symptoms so what do I say to help me get the right help and treatment?