I'm suffering with stiffness, aches and pains particularly in my back, pelvis, legs and hands. I seem to notice it more in the evening so was wondering if it was when my Levo was wearing off as I take it in the mornings.
It feels like when I get up from sitting down all my joints need to be oiled up or warmed up before I can move.
Getting in and out of the car is painful and turning in bed is becoming a challenge. I'm only 36 and was diagnosed hypo mid last year.
I take 75g of Levo every morning and vit D and k2 every evening. I know I need to now start b12 following amazing advise from this forum.
My last test results showed -
B12 - 465 (180-700)
Ferritin - 37 (15-300)
TSH - 1.93 (0.3-5.0)
ESR - 9 (3-9)
Vit D - 139.4 no range given
My GP has given me ferritin folate to take but I've not started it yet.
Do you think this is why I'm in so much pain?
It was so bad yesterday that I was virtually crying when walking around the house and had to use a suppository pain killer to ease the pain a bit.
I feel like I want to see a private specialist to get to the bottom of this. I'm trying to remain positive and know that nothing happens overnight but I really am struggling with having a normal life at the moment.
I'm also piling on the lbs which is worrying me.
Please help me, any suggestions would be greatly appreciated 👍🏽
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Fibi1907
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Levothyroxine doesn't wear off in the evening after taking it in the morning. It takes 7-10 days for a dose to be absorbed after taking it.
TSH 1.93 indicates you may be a little under medicated. The goal of Levothyroxine is to restore the patient to euthyroid status. For most patients that will be when TSH is 1.0 or lower with FT4 in the upper range. FT4 needs to be in the upper range in order that sufficient T3 is converted. Read Treatment Options in thyroiduk.org.uk/tuk/about_... Email louise.roberts@thyroiduk.org.uk if you would like a copy of the Pulse article to show your GP.
TSH result only isn't particularly helpful as it doesn't indicated how good or poor your FT4 and FT3 (which are the thyroid hormones) are. Low FT3 can cause musculoskeletal pain. It may be worth ordering a private thyroid test from Blue Horizon to check FT4, FT3, thyroid antibodies. I think Thyroid Plus 6 will cover those. thyroiduk.org.uk/tuk/testin... Post the results and ranges in a new question and members will advise.
ESR is an inflammation marker. Perhaps your GP could do a full blood count to see why yours is high as infection or inflammation somewhere in the body must be causing your pain.
VitD is optimal.
B112 465 is probably fine but as there can be B12 deficiency <500 I would supplement 1,000mcg methlycobalamin with a B Complex vitamin.
There is no folate result.
Ferritin 37 is low. Take each iron tablet with 1,000mcg vitamin C to aid absorption and minimise constipation. Take iron 4 hours away from Levothyroxine.
For some reason they don't ever test T3 & T4 despite me asking. GP normally says it's not necessary.
He did do a full blood count but didn't say anything about the results. I have them, didn't post as didn't know if I needed to. I can if you could help me interpret them.
I have the same symptoms as you some days worse than others. I also have IBS and a cyst on my kidney. Gps do not take thyroid seriously. Mind you as on the news they dismiss asthma too. Don't know what's going on. They just don't seem to care anymore. They seem to just want to prescribe for anxiety or depression.
I am not medically qualified but it could be levothyroxine is either not in a sufficient dose yet (when were you diagnosed?) or you need the addition of some T3 to alleviate the painful muscles/joints. Some doctors think we're on sufficient when the TSH is somewhere in the range when it should be when patient's symptoms are relieved.
I don't understand how prior to starting Levo the only symptoms I had were hair loss and fatigue. Now on Levo I feel a million times worse then i did then.
There are alternatives to Levothyroxine but you are unlikely to get them prescribed on the NHS and would probably have to get private prescriptions or buy online and self medicate.
The first thing you need to do is to find out what your FT4 and FT3 levels are on your current Levothyroxine dose.
As you have Hashimoto's, you may find changing to a strict gluten free diet can help. That means absolutely no wheat, rye or barley. Many of us with Hashimoto's find it really helps reduce symptoms
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Just had blood tested and asked about iron levels
Latest Medichecks Results - low FT3 - Dr will refer me to NHS Endo, should I try? Do I need to up my Levo in the meantime?
Help needed before appointment tomorrow!
Vit b12 advice please
