You have all been so hopeful and I am hoping to get some perspective.
It has been two months since lowering my medicine. Most recently I was on 175 mcg of Synthroid and skipping every Sunday to equal up to 150 mcg. I should remind you, I am sans thyroid and I felt hypo prior to my TT and 10x worse now sans thyroid.
My TSH as of most recent was .03 (range .3-4.5) (this has decreased from 175)
FT4: 1.7 (.82 - 1.77) (this has increased from 1.2)
FT3: 2.5 (2.0 -4.4) (this stays the same pretty much all the time but is slightly increased)
It has been two years of HELL. I was started on 150 Leoxyl and have tried Tirosint, Naturthroid, Cytomel, and now I've been on Synthroid. Ironically, my docs want to lower my T4 but since dropping that seventh day, my labs have gone the opposite yet I feel even more lethargic, more exhausted, MUCH MORE sensitive to the cold, and my already horrible sleep has become all the more dire. Oh- and my arms tingle more the morning following workouts, I'm more constipated and my mouth is much more dry. I also don't have as much hunger. I know hyper and hypo can be paradoxical to the other but I don't have heart palps, my BP is super chill and I don't get anxiety... My sleep has been extremely effected since day one starting thyroid hormone replacement but has not eased up even on NDT or with T3 added. All other levels are good regarding vitamins/minerals.
So, what gives??
I know my FT3 sucks and always has. It doesn't get higher than 3.0 unless Cytomel is in play and still tends to cause me some issues. I also find that Synthroid has suppressed me on it alone than even Tirosint and almost as much as NDT, to my surprise... but I may still swap back to Levoxyl. My TSH also tends to be at zero regardless of my dose since TT. The only time it has gone past 2.0 was when swapping from NDT to 125 T4/5 T3 but my symptoms were much akin to now, just more lethargic and cold... and at 137, too. I am at a loss. A genuine true, loss. My mind can't figure out if maybe I need some freakish amount of T4 to feel good again or if I need basically next to nothing. The only time I felt well was for the short stint on T3 only after TT prior to RAI but I know I still had lots of natural hormones still floating around so it's hard to say... I just want help, answers. My doc wants to try me on LDN to see if there's improvement as I tested posted for Hashimoto's but that was while on NDT and has not been tested in the year since.
I just want "me" back. I am awed by those with a thyroid on higher doses than me and then those without that also feel great and running marathons on less of a dose than me. And then there's me, sitting out two years of her life because she feels miserable. I'm only in my 30s and have lost so much time.
Also, I'm 5'9 and weigh 156.. that's been constant mostly just in case that helps...
Any and all feedback would be beyond appreciated and helpful...