Hi all,I would like some help please and apologies in advance for the long post but my condition is a bit confusing.
In 2011 my blood pressure got a sudden up to 16/10 and I started having trouble sleeping at night,in 2012 I was constantly waking up between 1-3 am and falling asleep again at 6 am and started gaining weight. Until 2014 I had gained 25 kgs with no major dietary changes.The more I was working out the more I was gaining.In 2015 I fell sick with the flu which lasted for a month,quite some time for the flu. I couldn't recover no matter the natural remedies or the conventional meds I was being prescribed. During that month(February 2015) I had a cardiac incident where my heart rate fell to 37 bpm and I was feeling as if I was about to pass out? As if I was having a stroke or as if something was clotting in my head?It is still hard to tell.B/P was normal 10/6.5 .I went to my GP who pretty much insinuated that I was entering peri and dismissed me. I visited a cardiologist who said that I was hypertensive and prescribed a light medication for hypertension. In March 2015 my temp fell to 34.6 and it is still there. In May 2015 I passed out in a bus on my way to work. I was diagnosed at the hospital with B12 deficiency of 109. In June 2015 I started suffering from bloating,rapid weight loss(29 minus in 5 months),cognitive issues,memory loss,increased debilitating fatigue,double-blurry vision,PMS,joint pains,back pains,shooting pains,vertigo,hair loss,trembling,increased anxiety and ataxia.
Among all those goodies I had those sudden incidents when I am feeling that I will faint or that something is seriously wrong with me and my heart rate goes up to 125 bpm and my b/p rises to 18/11.When they happen in daytime I can get over them by moving around after the first dizziness goes away. But when they happen at night they are scary. At first I get a generalized feeling of impending death( no,it is not a panic attack although it looks and certainly feels like one). Then I get sweaty and a hot rush all over my body and that's when my heart starts galloping in my chest. My blood pressures goes from 8 /5 to 18/10 and I get the shakes,my teeth chattering,I feel so so freezing cold as if life has been drained out of me. This usually lasts for 30-40 minutes,last time it lasted 5 hours so I had to call help line for advice and they sent an ambulance.
I have been to 28 doctors of all specialties,most of them prescribed me antidepressants . In January 2016 I had extremely low blood sugars. Like 25 or 32mg/dL but no doctor would believe me. After the last incident that was severe- I was with 125 bpm for 5 hours- I was hospitalized for the day and referred to a new cardiologist who didn't think that I was a nutcase as his colleagues did ,but that I have either thyroid or adrenal issues. He ordered a bunch of labs and here's what showed up in my labs:
HbA1c 4.6 (range 4.8-6)
TSH 4.67 (0.27-4.2)
8am Cortisol 22.6 (4.3-22.4)
8pm Cortisol 2(2.3-11.9)
24hr urine Cortisol 137 (20-130)
ACTH 9.6 (7-64)
FT4 1.07 (0.7-2)
Now,I visited an end who said that she couldn't figure out what is going on with me and that I should take an antidepressant. She couldn't even figure out why my HbA1c was so low. At least now I can prove that I had serious hypoglycemic incidents. But still I can't find a decent doctor to get a diagnosis for either thyroid or adrenal issues.
Good thing that adenoma/insulinoma/phaeocytochroma have been ruled out with tests in the hospital . But since then the 2 endos don't seem to be willing to provide a diagnosis. I am with no medication or medical advise what to do next to recover. Only my cardio has provided me some advise how to stop those tachycardias.He suspects my adrenals because how I describe it looks like a panic attack but he said that it isn't . Probably an adrenaline rush.A hormone rush with certainty.
My question is,has anybody had something similar to those incidents that are tormenting me? Any clues if I should examine my adrenals or my thyroid?
Thank you all in advance!