Hi again everyone, I posted at the weekend with 'Struggling with hypothyroidism' and I have now got a couple more results That have raised more questions and I was looking for more advice.
My latest results are:
TSH: 3.1 (0.27 - 4.50)
Free T4: 18.1 (11 - 23)
Free T3: 5.64 (3.10 - 6.80)
Folate: 9.4 (3.60 - 18.70)
From previous tests the week before:
Ferrtin: 68 (13 <)
TPO: 9 (0-34)
B12: 168 (197.00 - 771.00) --- I started injections this week.
Vit D from June: 115 (75 < ) --- I supplement 5000IU daily because I was deficient.
To recap my original levels in June were:
TSH: 31.9 (0.27 - 4.2)
Free T4: 9 (12 - 22)
My mother and brother have underactive thyroid.
And I am on 25mcg of levothyroxine.
From my latest results the T4 and T3 look pretty good, however I do not feel pretty good.
What I was wondering is how my results could change so dramatically on such a small dose of thyroxine if I don't have hashimotos.
And also, how my T3 and T4 are high when my TSH is still at 3. There obviously isn't a conversion issue, but with the TSH not being at the ideal place at around 1 I was wondering what could be going on?
I've spoke to 3 seperate GP's who all will not increase my dose to 50mcg so I wanted to ask everyone what their opinion is.
Is this the end of the road and I just hope things will get better on the 25mcg?
Written by
Lollyq
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You need the T4/Levo increasing and I would suggest a GOOD B Complex with the B12 injections to keep all the B's in balance ... Further testing of B12 is of little value as the results will be skewed - you need to keep on with the jabs. If when you are on 3-monthly ones and you have symptoms - then you must protest and demand better treatment.
Your doctors are keeping you under medicated by refusing to increase dose to 50mcg. If 50mcg proves to be slightly too much they can prescribe 25/50mcg alternate days.
The goal of Levothyroxine is to restore the patient to euthyroid status and for most people this will be when TSH is 1.0, or lower, with FT4 in the upper range. Read Treatment Options in thyroiduk.org.uk/tuk/about_... Email louise.roberts@thyroiduk.org.uk if you would like a copy of the Pulse article to show your GP when you request a dose increase.
Vit D 115 is replete so you should reduce the 5,000iu D3 dose to alternate days to maintain levels. Take vitD 4 hours away from Levothyroxine.
Ferritin is optimal >100 through to half way through range. You might want to supplement iron and take each tablet with 500-1,000mg vitamin C to aid absorption and minimise constipation. Take iron 4 hours away from Levothyroxine and retest ferritin in 4-6 months.
I am not a medical professional and this information is not intended to be a substitute for medical guidance from your own doctor. Please check with your personal physician before applying any of these suggestions.
I feel under medicated! I am going to write a letter to the gp requesting at least a 25/50 alternate dose because that was suggested to me at one point. And I will include all the evidence I can including that article. They just sit there and refuse me and say that it is not worth the risk. Literally 3 of them have dismissed me.
Thank you, I will half my dose then to 2500iu.
I take my vitamins at least 4 hours away from levo.
I will also get some good quality iron and vitamin c
Aim for 50mcg and negotiate 25/50mcg if you can't get 50mcg. I'm really not sure why they're being so conservative, if 50mcg over replaces you it's soon resolved by reducing dose.
You might want to ask about B12 deficiency on healthunlocked.com/pasoc I think some people may feel worse before they feel better when having loading injections.
Niether do I, they're the same Dr's who treat my brother who is on a 175mcg dose. All I keep hearing is "I am not willing to put you at risk of heart problems, especially when your results are perfectly normal"
Ahh that is a good idea, each time I have an injection it's like I've just had loads of sleeping pills!
It is rarely one thing causing our symptoms. So much within the body is connected. Am sure improved dose of Levo will help along with improved B12. There are many crossover symptoms with B12 and thyroid. Have you seen the list of B12 deficiency signs and symptoms ?
Yes I have, there are a lot of similar symptoms I agree. The tiredness/fatigue/no energy is the worst part about it all for me. I'm such a naturally active person who loves long walks.
Fingers crossed I get an increase. My brother has 175mcg who is treated by the same Dr's as me, I don't understand why it's such a struggle for me!
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