Good Afternoon everyone, I am just after some advice please.
I was diagnosed underactive thyroid with high antibodies Aug 2015 after feeling unwell for a long time. I was recently upped to 75m levothyroxine as am still feeling rubbish, I did see an improvement in symptoms after the initial dose of 25mg, but as soon as I moved to 50mg I got really bad aches and pains, the headaches have returned and some days brain fog very bad. Blood tests showed my ovaries were packing up and that i was in premature menopause ( I was 47 then) and started me on hrt. Also my doctor prescribed Prozac for the pains which I didn't take, then gababenton which made no difference. After twoing and frowing, changing brands of levo from mercury pharma which I was fine on 25mg, then actavis 50mg which gave me an upset tummy, I then moved to wockhardt which seemed to be a lot gentler. Still no better my GP referred me to an endo through private healthcare at my work. Anyway the first meeting I could tell he wasn't particularly interested,but i insisted on giving him a printout of bloods, symptoms etc, he was dismissive about the different brands of levo having side effects, said they are all exactly the same, didn't think the fact that my gums had gone from being healthy to really unhealthy over a short period of time and i needed 4 crowns replacing was possibly related etc, previous bouts of vertigo, swollen lymph nodes etc. This one dimensional way of thinking immediately got my back up, as i know he was probably thinking I was a hypochondriac. He suggested upping the levo to 100 and having a synacthen short test for the adrenals which i had done , and see him in two weeks. I did this and the results came back "normal". At the follow up appointment Imentioned to him that when reading about synacthen test on the hospital blood test form, it actually said that HRT medication can have a bearing on the results, so he suggested coming off hrt and having the test repeated in 6 weeks. At this point they will test my TSH levels as well. I had to ask him to ensure the T3 test is included also so he scribbled this on the sheet, he said they don't use that to measure TSH levels. I had made my mind up to possibly stay with him to get these tests completed and then go to someone else for a second opinion. However, he did say that if I am still feeling as I do at the next visit, he will consider a trial of t3, but there is a lot of controversy in the NHS etc and the GP may not agree to fund it. I explained that I have no quality of life, I have to go to bed after the supermarket run and often have to work from home as I feel so rough. My reason for posting today is to ask for pointers in how to encourage him to allow this trial, and also how do I ask/get my GP to pay for it. If I have to I will pay for the trial dose, but I know its expensive and I wouldn't be able to do this on an ongoing basis. I have been contemplating going down the self medicating route but don't have the confidence or knowledge to do this . For info my t4 was at 4.65 prior to starting on levo, down to 2.2 at my last test in March, vit d result 77 range 50-150. vitamin B12 within range sorry don't have the results to hand, i believe it was at about 969.
Thank you for all the help and knowledge I've gleaned from this forum