Ten years on - if only I knew then, what I know now. (warning - long post)

[Chippysue]

I attended a “well woman screening” in 1999. I had no reason to doubt anything doctors said so without doing any research or asking any questions I agreed to have a tetanus booster vaccination and 10 days later I was paralysed with Guillain Barre syndrome, It took around 5 years to fully recover. This was my first auto-immune disease.

Exactly 10 years ago in 2006 I started to feel quite unwell.

I was in utter disbelief that doctors were dismissive, condescending and full of unfounded arrogance. This was from the consultants too. Doctors are taught to listen to their patients, that the patient will tell you what is wrong. How dare they ignore me, I was angry. One endocrinologist even referred me to a Psychiatrist - I was unhappy but went along and the Psychiatrist confirmed that I just needed thyroid replacement! I had almost every symptom of hypothyroidism but was told that my thyroid was fine. I gained 4.5 stone, could barely walk, ached all over, was going bald, slept for 18-20 hours each day. I learnt that they will not diagnose you with hypothyroidism until the TSH blood test is above 10. For heavens sake how ridiculous is that?! Months became years.

So I have a second autoimmune disease - hashimotos. On a good day I would go out on my mobility scooter, using the blue disabled badge that I had to fight for. It was a high price to pay as the cost of seeing 10 specialists and a naturopath, herbalist and many other treatments, also being unable to work. I lost friends too as they just didn’t believe how ill I was, even my sister as she too believed what doctors were telling me. It sounds melodramatic but I really believe that the internet saved my life as total strangers would understand how I felt. I read hundreds of articles and blogs, researched studies, and collected dozens of books. I was severely depressed and even psychotic at times. I completely withdrew from life. I was in the bottom of a huge deep and dark pit.

I felt totally let down and really doubt that I would see my GP any time soon. My chiropractic adjustments are far more helpful. People say that everything happens for a reason and that something good will come of it, well after 10 years I can now say that lots of good things have come out of this ordeal.

With the help and support of my immediate family, and the people on the thyroid forums I very slowly climbed out of the pit. I eventually found a thyroid medication that I could tolerate. I had found an endocrinologist who had the appetite to help me, he listened to me, I would phone him every 6 weeks after blood tests and was in control of increasing the dose myself. I didn’t feel any improvement for 18 months but had no other choice but to keep taking the thyroid hormone replacement. My family used to drive to Sheffield to collect it until I finally encouraged my GP to prescribe it.

When my TSH was suppressed he didn’t insist to lower the dose, he put it in writing that it was unfair to try to control my dose when I had been ill for so long as I was more than capable in managing my levels. I still see him twice a year now, mainly to keep GP’s off my back as they would lower my dose. I do take another natural thyroid which I buy from USA which my GP will not prescribe.

When I started to feel better it was so gradual, I remember being able to sit in a chair without having to support my arms and head! I was 52 and could get through the day without a sleep!!! My hair grew back, I could walk without a stick. My skin softened, I was no longer depressed, I appreciated every day feeling well. Not a surprise but GP’s were still not interested in how I had become well! I made more friends and started hobbies.

I used to look out of the window and watch people walking past and could not remember what it felt like to walk unaided. Then when I became well we were able to go on a walking holiday in Scotland and a family trip to New York. It would take a week to recover afterwards but I was able to walk for miles. I was then asked to appear on “This Morning” with Dr Chris Steele and then to be a Trustee for Thyroid UK. I have met such lovely people whilst running a thyroid support group. It is unbelievable how many people are being let down by the medical system, I have met people who have lost everything as they are unable to work. Many people self medicate as it simply is their only chance.

I spent many hours researching health issues and naively thought it was just thyroid patients with problems. Dr Malcolm Kendrick convinced many of us at the Thyroid UK Conference that high Cholesterol does not cause heart disease. Big Pharma want us all to be taking them, they make a lot of money from them. They are harmful and dangerous to our health, the Statin Nation dvd is excellent in explaining how we are being conned, but people continue to have heart disease because high cholesterol is not the culprit.

There are two Ty Bolinger documentary series on “the truth about cancer” which is just brilliant, it is heartbreaking how the 1938 Cancer Act is still obeyed. There are several cures for cancer which people are not informed about. We are not given the choice because of this Act and because big Pharma make so much money. Big Pharma cannot patent natural herbs and plants. I follow many of the doctors and health experts who featured in the documentaries. There are some amazing doctors and clinics around the world who are saving lives and yet the establishments like the FDA in America do their utmost to close them down. It is just criminal what is happening out there!

So many people ask the questions - why have we so many more children being diagnosed with autism? why is there ADHD? Why do so many children and adults have allergies? so many different allergies now. Why are so many people gluten intolerant or coeliac? Why is there a huge increase in hypothyroidism? Why are people being told that they have IBS or fibromyalgia? why are many more women being diagnosed with breast cancer? Why do we see millions of £’s and $’s being raised by cancer charities and yet cancer is claiming so many lives. Why??? Well I have found out the answers to these questions and you can too. It has been a fascinating journey. So for us thyroid patients, we know what it is like to battle to get diagnosed and treated. Well I feel for all of the people fighting their health battles. The medical system is brilliant if you are broken and need fixing but not so good when it comes to disease as I and thousands of others have experienced.

Nutrition is absolutely vital and yet doctors only know a tiny amount of information on nutrition. 70% if our immune system is in our gut - Many people are misdiagnosed with IBS.

I will not take any pharmaceutical drugs, not even an paracetamol. I will never have another vaccination either.

The biggest catastrophe is vaccination. I have avidly followed the Vaxxed the movie every day for the past two months. The film was censored and banned from the film festivals but the team have shown it in dozens of towns around America. I have listened to all of the Q&A’s and not one single person who has seen the film (which includes doctors) have disagreed with the findings - why? because they are the facts, the CDC has fraudulently altered data in the MMR/autism study. A top scientist is a whistleblower, it’s a fact, not a conspiracy. Big Pharma do not want this to come out.

Thousands of parents of dead or damaged children are speaking out. Heartbreaking accounts of every vaccination there is. Hundreds of the military are affected too as they are forced to have vaccinations.

There are over 270 new vaccinations in the pipeline, and at the moment it brings a staggering $81 billion income just from vaccinations. They do not harm everyone, but nobody knows which children or adults they will harm, it’s a game of Russian roulette.

So on 1st July if SB277 in California goes ahead then nobody will be able to refuse vaccinations, mandatory vaccinations will kill or damage so many more. Other states will follow and then other countries. What will the world be like without freedom of choice? and so many damaged babies.

Why is this not on the National News??? well this is where it gets really scary - because Big Pharma pays their wages and can control News channels.

So for me - and it’s up to you if you don’t want to look into any of these issues further, it is a frightening time, I haven’t mentioned everything but it’s just frightening that vaccinations are not tested! The ingredients of each vaccination can be found on the information slip that is wrapped around the vile. All we have to do is convince the nurse or doctor to let us see it. It is a shocker! When you see the bunting up in doctor’s surgeries promoting flu vaccine and is available everywhere you go, just please do your own research before you allow that needle to go in.

So 10 years on - at 57 I so wish I had known what I know now 40 years ago!

I feel well, very well compared to 10 years ago but will I ever feel as well as I did before thyroid disease? I am working on it.

Sue

thyroiduk.org