Continue to fear for my life. These symptoms are horrible.

[Funnygembunni]

My new labs. Funny my endo called saying hey you've def got Hoshimotos. I've known that for over two years. He said to continue 30mg of Armour. I'm about to increase my dosage myself. What is a safe dosage to increase to? I'm the exception and have lost 20 pounds in the past 6 months. Here are my labs.

Thyroid stimulating immunoglobulin 32 range 0-139%

Vitamin B12 540 range 211-946

TSH 2.860 range 0.358-3.740

Free T4 0.77. Range 0.76-1.46

T3 Total 125. Range 71-180

Sed rate 24 range 0-20

Cortisol 11.8. Range 6.2-19.4 am. 2.3-11.9 pm

ACTH 9.0. Range 7.2-63.3

Hemoglobin A1C 5.3. Range 4.2-6.3

Insulin 18.5. Range 2.6-24.9

C-peptide 4.9 range 1.1-4.4. Wasn't fasting labs though

TPO > 600. Range 0-34

Thyroglobulin AB 1.4. Range 0.0- 0.9

[Clutter]

Funnygembunni,

You are undermedicated. Most people on NDT do better with TSH <1.0 and Free T3 (FT3) in the top third of range. You can increase in 30mg increments at two week intervals until you are on 90mg. Hold at 90mg for 6 weeks and have a thyroid test including FT3 before increasing further.

Do you have 100% gluten-free diet? This can help reduce symptoms and antibodies.

chriskresser.com/the-gluten...

thyroiduk.org.uk/tuk/about_...

*Edited to amend 90mcg to 90mg.*

_________________________________________________________________________________________________

I am not a medical professional and this information is not intended to be a substitute for medical guidance from your own doctor. Please check with your personal physician before applying any of these suggestions.

[Funnygembunni in reply to Clutter]

Thanks clutter. I always appreciate your knowledge. I went gluten free for two months and no change. I was almost too delirious half the time to sit through every label of everything I bought. I will increase my dosage as you say. Palpitations will most likely be expected during the adjustment correct?

[Funnygembunni in reply to Funnygembunni]

Clutter... Armour here comes in mg. Not mcg. Still increase to 90?

[greygoose in reply to Funnygembunni]

We usually talk about Armour in grains. It's easier to understand. Well, I think so, anyway! lol

[Clutter in reply to Funnygembunni]

Funnygembunni,

It was a typo. I've edited mcg to mg. Increase to 60mg initially, and, if necessary, increase to 90mg two weeks later. If you do it gradually you shouldn't experience palpitations.

Two months gluten-free is long enough for digestive improvement but you probably won't notice any improvement in Hashi symtoms and antibodies until you've been g-f for a year or more.

[Hidden]

hi funnygembunni... are your tests a thyroid function blood test? are u uk? i am begging my doc to test everything, and he keeps blocking my requests.. i cant afford to go private, can we get this in depth test on NHS? I understand your fearing for your life ... to people around me that dont know what its like, they think i am crazy...

[Clutter in reply to Hidden]

Martine1234,

Funnygembunni is in the USA.

FT3 is available on NHS but the lab will probably decline to test it unless TSH is <0.03. Some CCGs restrict FT3 testing to secondary care. You can order FT3 tests from Blue Horizon and Genova via thyroiduk.org.uk/tuk/testin... or look up Medichecks.

[Hidden in reply to Clutter]

thankyou.. my tsh is exactly 0.03 and t4 21... am soo ill ... and i obv cant up my dose anymore... its not working... i feel i am putting fuel in the car but theres a leak in the tank lol... thankyou again x

[Clutter in reply to Hidden]

Martine1234,

The Blue Horizon Profile 11 will test TSH, FT4, FT3, thyroid peroxidase and thyroglobulin antibodies, ferritin, vitamin D, B12 and folate which should give a good clue to what is going on with you.

[Funnygembunni in reply to Hidden]

Clutter is correct. I am from USA. It took me almost a year to get an accurate diagnosis of hoshimotos. And then almost 6 months and four endos before I could convince my PCP to let me try synthroid. Synthroid made me worse and the doctors here were playing it safe with my dosages which were too low. A month ago I listened to them here and increased my dosage as they advised and ive been 75% of who I used to be. Only have had two episodes as I call them and it was due to extreme heat. I was told through the entire fight not to stop until I found a doctor who would listen and treat me despite "normal" labs. I will tell you the same exact thing. Armour has helped me tremendously. I am grateful for the advice here. Message me if you want to know anything about my personal experience with this ongoing and often scary issue. You're in the right place however as the great people here know more than most doctors and they care more than any doctor I've ever gone to for help.

[Hidden in reply to Funnygembunni]

hi, i had a horrid weekend, was so down and out frustrated, scared and hopeless, i really was at my lowest. i read lots of posts on here and had some great replies, including yours.. thankyou all

i got up this morning and pulled myself together and made the decision that no matter what.. i wont stop fighting until i get proper care from the doctors that should be doing more! i was so scared yesterday when it dawned on me , that people like us are abandoned and made to feel crazy! we all have families and friends, and we are all worth the best care... i am so sorry to hear that so many suffer, .... i just want to be well again... not perfect, but functioning, and happy... no pain and i dont want to go bald... that is my biggest fear! xx