My appointment with endo today... he says it is... - Thyroid UK

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My appointment with endo today... he says it is IBS. thank you and good bye.

Justiina profile image
20 Replies

Just came home. I drove 300 kilometers to hear it is IBS.  I got a prescribed fibers.

Definitely not thyroid problems, bouncing T3 from 3 to 5.9 and then back to 3, with bouncing TSH, it is just normal, because thyroid levels just do that.  High thyroglobulin is normal.  It is just IBS. 

No comments about low temperature which has now been 35.5 which makes me sick. 

Maybe it is allergies, but nothing can be done, could be tested but oh well then you just know what you are allergic to, nothing can be done to help it. 

It does not matter recently I have had a lot of breathing issues, high heart rate in the morning, feeling like my heart coming out of my chest, BP was low and heart rate high when he measured.  It does not matter that I can barely get upstairs. 

It is just IBS.

No need to test ferritin as haemoglobin is so good even though I have heavy periods, no reason to test vit D or anything. No need  to test anything, period, it is IBS.

I heard a crack from my chest when my heart turned into a piece of rock. 

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Justiina
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20 Replies

Oh no :0(

What a let down.  IBS eh?  Well there you go and all you needed was fibre?  :0/ Okaaaaay.

I know he seemed like a pretty decent endo judging from your research on him, so I can only imagine how pee'd off you must be feeling. 

Well, leave a the turdiest review possible and know that you've just avoided *another* moron.

Perhaps in a day or two, you could write to him and ask him to explain his dismissal of your symptoms and lack of care ho took with you.  He just seems incredibly low energy and a waste of space.

Hugs to you J,

H xxx

Justiina profile image
Justiina in reply to

Thanks.  I am very disappointed indeed.  I expected him to at least recommend another specialist if he could not come up anything else except prescribing me fibers.  

Need few days to recover and think !

Pastille profile image
Pastille

Tut! idiot! It's his heart that is rock!

Rapunzel profile image
Rapunzel

.....you added an I in front of your diagnosis did you know ? :D

Justiina keep listening to your body. Get blood tests yourself don't wait for this buffoon to put 2 + 2...he has obviously made 5 and will not be moved.

(((Justiina)))

Justiina profile image
Justiina in reply to Rapunzel

Hahaa took me a minute to get that. Yeah BS describes it well. 

Unfortunately I can't get much tested by myself over here in Finland :(  

Another endo bites the dust. What a moron he is. :-)

rosetrees profile image
rosetrees

How is he qualified to diagnose IBS?  Surely that is a gastoenterologist's job?  The most he should do is assure that it isn't your thyroid!!!!

Justiina profile image
Justiina in reply to rosetrees

Well he was interested of digestion.  Says it in his profile when I booked the appointment.  I guess it makes him specialist! 

Fiber he prescribed contains aluminium,  guess twice am I going to buy it :D I told him I already use flaxseed but was worth nothing in his eyes.  

rosetrees profile image
rosetrees in reply to Justiina

Maybe he's hoping to become an Alzheimer specialist and is trying to create patients for himself?

Marz profile image
Marz

Does he not know that the second highest amount of T3 receptors are in the gut ?

I would ignore the Docs and just do your own thing with healing your gut and spoiling yourself whenever you can....

Daffers123 profile image
Daffers123

what a disappointment.  the exact same thing happened to me with private endo - after several visits he said antidepressants and  IBS , referred me to his mate the gastroenterologist,  who put me through endoscopy and entoscopies- very unpleasant and all at my expense -to find nothing. not even Celiac or Crohns....

I'm so sorry for your hopes bring dashed. I am still battling on with the help and advice from a good naturopath and this forum,  andc trying to get the hormones balanced by myself.

Justiina profile image
Justiina in reply to Daffers123

Yeah it feels so awful when you are treated that way! 

I was hoping I would have got some tests done and then go selfmedicating maybe.  But now I am unsure of stuff like ferritin etc so can only do what I have done before with normal supplements.  

rosetrees profile image
rosetrees in reply to Justiina

You can order tests for yourself.  There are details of Blue Horizon and Genove UK on the main thyroid UK website.

Justiina profile image
Justiina in reply to rosetrees

I am in Finland so it is out of question. 

rosetrees profile image
rosetrees in reply to Justiina

Are there any private labs in Finland or maybe Norway or Sweden that you could use?

Justiina profile image
Justiina in reply to rosetrees

One walk in lab in Finland.  Tho they don't do thyglab, tpoab only which has twice been negative.  Been asking thyglab as my thyroglobulin has been 10 times normal but refused to get that test.  TsH test is out of the question because of distance. 

But I can get ft3 and ferritin tested there.

  Will ask if thyglab would be possible as it seems to be tested in most private laboratories! 

Justiina profile image
Justiina

True,  there I could get some tested.  Tho TSH would be pointless as it is 125 kilometres drive so it might not be very reliable.  

Prices seems to be reasonable.

ITYFIALMCTT profile image
ITYFIALMCTT in reply to Justiina

Are there ever any special offers (midweek or similar) for local hotels nearer the testing venue? That way it would be more straightforward to have a fasting/early test.

SilverAvocado profile image
SilverAvocado

One thing I always think about being offered total BS... At least its a clean cut case, you know he's at fault, time to move on. Sometimes better than being strung along by someone who says half the right things but actually never has the guts to give you a full diagnosis or proper treatment, and makes you question yourself and wonder if you're the crazy one. 

faith63 profile image
faith63

Do you have hashimoto's?

Time to order your own tests and self treat, paying attention to healing your immune system.

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