I had Graves, then RAI, then hypo since 1990, and pretty stable on thyroxine. But I've felt rough for over a year, had overactive symptoms eg exhaustion, fast heart rate, GP thought T4 a bit high, so reduced from 175, to 100 in the end. Felt very ill! Then discovered Vit D extremely low, it's now at top of range after treatment. Thyroxine now back up to 175 again. Still feel exhausted at times. Have a few good hours in the morning and again in the evening, but late morning onwards I feel weak, exhausted, internal shaking, very slow, restless legs. GP said slight possibility of lupus from 2 consecutive tests. In December I was so desperate, I paid for private rheumatologist and endo appts. They don't think it's lupus, but query an adrenal issue. No waiting for NHS adrenal and glucose tests, plus bone density scan. Endo didn't like me asking many questions! He said my TSH has been too low for ages eg 0.03, 0.27, 0.03 (range 0.35-3.5), so I may have osteoporosis! And "it's your brain telling you you have hypo symptoms!" Didn't go down well with me And I was paying for that! Magnesium and B12 are fine, Folate and Haem are near top of range, red blood count high, but ferritin has been around 58 (range 23-300) for 18 months. I said I'd read that it should be optimal for T3 conversion, Endo almost snapped "it's fine." Free T4 has been around 20 (range 8-21). Free T3 has been between 3.7 and 4.2 (range 3.8-6.0) I asked if maybe I'm not converting to T3, and he almost snapped again that he was very happy with it. I sort of hope they find a cortisol prob now. I've had enough of not being able to even go to the shop some days. Anyone got any advice? Can/ should I somehow increase my ferritin, without other blood levels going too high? Anyone had adrenal/ Addisons diagnosis? Want advice before another hosp appt on Wed - a different endo!
Sorry this is long