IS THIS MY KIDNEYS or related to gall bladder removal?

I have severe pain all in my right back when my bladder is filling up and as it does it makes me "puffed out". I have a small cyst and all ct scans showed nothing else sinister. Sometimes I have trouble passing urine. Sometimes no problem. After eating on passing urine suddenly its like a pressure/pain all in my back and a squeezing in my chester sensation. I have had my gallbladder removed in April. I am told I have dumping syndrome now. When I eat I either pass out, or go very low whilst digesting and get a lot of pain in my liver riht back. I come round usually went I want to pee. I can pee all night and am so lethargic by morning. My nasal passages are dry, eyes, Ive dont want to eat because of pain, my eyes are dry. Ive noticed if I eat bread, fibre, drink coffee, I retain urine and can go all day, despite water and then pain is awful all through right back all in my back. If I eat rice puddings it takes ages to pee. I suffer from severe colon transit time and it feels as tho when I eat bread/fibre/cottage cheese/all my bowels soak up the liquid my water so I cant pee, unless I relax at night on the settee or pee all night. I suffer always with insomnia. I have had to come off antidepressants because I peed even less in the day, was breathing bad, and looked six months pregnant. In A & E noone was bothered as ecg fine etc. Stopping the anti depressants and I peed better. But now I have such pain worse in the evening depending on what I eat in the day. I did suffer from yellow fatty bulky stools, and the pain all through my body after passing was unbelievable..like someone had tipped acid all through me. Now my stools are brown/grey and very constipated. I tried another anti depressant. My stomach ballooned again and I got out of breath after passing a penny. I would get to a friends, sit down and suddenly soo tired..only to come round when I have water. The pattern is I eat and go very low whilst digesting it seems, then I start to get puffed out as urine takes ages to fill my bladder. My insomnia is bad always has been. I am 66. I even took Ranatadine for my hernia/reflux. Then next morning I felt wonderful but stomach swelled again and I peed less all day. Stopped it and peed better. If I havenot peed my abdomen is huge. I have had closcopy bladder urethas fine. Bloods say all fine (blood in urine years now since hysterectomy 1985 and 6 pints of blood transfusion - overies left but insomnia started then!!. Ive had upper gi barium follow through - ideopathic dumping a little, gallbladder removed and an adhesion from stomach to small intestine. Gut hormone profile. Tests for diabetis. CT scan showing only cyst and fatty liver. I dread peeing by the end of the day (worse if Ive eaten high fibre popcorn in the day)) and dread passing a motion. I dont know why my abdomen swells and I retain water on antidepressants and even on an antacid tablet. My nasal passages go completely dry, eyes, mouth eyes even blurry at times. My GP thinks Im nuts I think but I am fighting consultants still. Last night before bed I ate two wheat free hot x buns and immediately passed out for hours..until I woks and wanted to , pain all in my riht back as it built up and puffed out. I KNEW if I ate them I would not wake up so much in the night to pass urine. I was right but 3 times and felt awful still so lethargic. my blood sugars can be 4.5 which is not diabetic but for me I cant think talk concentrate until..I have water. I perk up. Have porridge and peed a tiny amount. No pain. I went to my sons and had 3 coffees. A tiny pee bit of right back pain. Nothing to eat. But then I ate 3 biscuits. OK walked the dog. Home. Then as usual standing from 3.00 to 4.00 I can feel urine trickling into my bladder. It takes an hour and Im getting pain in my right back/liver area. I start to go drowsy but pee a tiny amount and perk up. I eat tiny chicken, sweet potato, brocolli, cauli stewed apple and custard. My abdomen is swollen (Ive also drunk water today). I sit and go a bit drowsy. Then the crime of eating 6 ginger biscuits. Feel fine. No pee. If I dont eat fibre, bread, pots milk puds I seem to pee better. My bowels are now dark brown very constipated. The dietician has given me Fresubin milk drinks 2 a day because of weight loss. It feels as though when I do pee all night i am losing water weight. My arms are hanging and tops of legs so shrivelled from weight loss. II came off medications because of insomnia and high bp. I have gone out with my daughter and eaten a carvery and small apple crumble. Its always about one and a half hours later if I eat a big meal of veg pots in the day I am suddenly screaming in pain all in my liver area far right rib and all through back. Everything I read about the kidney diet i.e. no fibre, nuts, milk, banana, oranges potatoe..all make me pee less. If I eat fruit the pain can be soo bad maybe because of the dumping syndrome but I will pee even more all night. If I cant pee much in the night I still am awake and restless all over the bed because it feels as tho my urine wants to come out but wont and I am wide awake. Nothing in there. I walk the dog..suddenly I start to get puffed pain in right back because bladder is slowly filling up. GPs arent worried said kidney function fine but I am wondering if Im working on only one, or are they slowly packing up. Is it something gone wrong since my gallbladder op (also had a colonoscopy and that was fine but nothing but tonnes of yellow fatty diarrohea on taking the laxative for the procedure. Before that because of the antidepressant I was not peeing much and was breathing bad. Breathing got better and stomach went down stopping it. The colonoscopy procedure seemed to make it worse. I dont know if it is my bowels so constipated that when I drink water or have fibre,milk puddings, cottage cheese potatoes the water is being absorbed completely and not getting through to my bladder. I have no idea all I know is when I pee all night I have noo pain no shoetness of breath but soo thirsty. I am on clonazepam now 8 years for restless legs. My GP said if water brings your blood sugars up - which it does - its blood volume! I go drowsy on sitting down, my friends give me my water and 20 mins later I wake up. Is there anyone in this whole wide world who has ever experienced anything like this. There is a pattern on eating I can get pain about one half hours after eating. If I dont pee all day or pass a bowel motion and only have coffee and a couple of biscuits I can feel fine. But most days I feel dreadful by the end of the day in such pain on peeing all in right back spreading through my back and at night I usually have to lie flat for hours before bed to get my bladder to fill very slowly like in the night..all laying flat relaxing. If it wont pass through if I go to bed i am up 2 hours later and off peeing all night. I dont know if this is a kidney, such bad constipation, or with the pain in my right back/liver area a gallbladder op gone wrong. Either way I feel this is afdecting my kidney function, my liver pancreas is stressed and certainly my bowels. If there is anyone who has ever experienced anything similar..please tell me Im not nuts. I just cannot take medication.

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16 Replies

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  • Basten, I note you have joined in 2014 but on looking through a couple of your past posts I don't know whether or not you have been diagnosed with a thyroid gland dysfunction.

    I do know you have had a gallbladder op but are still suffering various symptoms and I realise you've been like this for some time now.

    Have you had a recent blood test Full Thyroid Function test? If not ask GP to do one which includes the full range. In particular in would be good to know your FT4 and FT3. Sometimes our TSH doesn't rise sufficiently to be diagnosed but can still suffer clinical symptoms.

    Are you making sure you are hydrated with water, not just drinks in general. Don't overdo it mind you.

    Sometimes we seem to get a myriad of complaints/symptoms and the doctors don't have much idea.

  • thankyou yes thyroid OK. Just gone so downhill since then. Sorry not sure which group to ask just soo fed up.

  • I found this.... Which might provide some pointers?

    ".........overload', patient must reduce all kinds of chemical overload on the liver. This includes pre-packaged food, minimizing use of perfumes, cosmetics and even personal care products.

    Why is diet and elimination of all those products so important?

    Once the gallbladder is gone, there's nowhere for that bile to collect. Instead of that, fat from pommes frites (not to mention bigger sins) cannot be modulated as it was before when person still had a gallbladder. And without bile (its function was to break down the fat), the small intestine can become flooded with water. This happens because the fat draws water from surrounding regions of the body. This can be combined with activities of intestinal bacteria, which can cause bloating, bad restroom experiences, and stomachaches. This is the main reason proper diet is so important during patient's recuperation. On the long run body adopts to the gallbladder 's absence over time, and few months after the surgery patient should be able to resume more or less regular eating habits......"

    steadyhealth.com/articles/w...

    G x

  • wow thank you for replying and looking that up and sending. It does make sense. I have been worse since the op. I am keeping on to my GP and hospital as now no fatty stools but very constipated and GP said light brown grey!! That is a liver problem so all connected maybe. I cannt put up with pain much longer and weight loss. Maybe something has gone wrong since op.!! I know I cannot take medications..feel awful. I am adjusting diet no milk wheat cheese eggs, but now they have admitted I losing weight. Oh well time will tell and hopefully I wont have to wait too much longer for a brighter 2016!! 2015 has not been brill. Happy Xmas

  • Hi Renal pain feels deep in the tissues. make sure you have not got a low grade urine infection , urine test.

    Jackie

  • something simply is not right here

    I had my gallbladder removed exactly 1 yr ago and I danced out of hospital just 3 hours after going into theatre and have not looked back since with no problem whatever

    sounds to me like they have caught something in the process or they have sealed something incorrectly or you have gluten /wheat sensitivity or you have diabetes insipidus

    go back to your surgeon and make a fuss

  • thankyou for replying. Yes am keeping on and on but they just wont listen. Now children are going back and complaining to hospital. I should not keep losing weight. As you say maybe gallbladder op has gone wrong!!!

  • Which hospital and which area are you in ?

  • Basingstoke Hampshire uk

  • HI Basten

    So sorry that you are having such a horrible time!

    It might be a good idea to keep a diary for a few days of frequency of urination (even quantity, if you can bear it) and what you are eating and what you are drinking and how much. Keep a note of the time you eat or drink and time of urination. Then present that to your doctor. They do like to have numbers to prove what they are dealing with!

    I can't tell whether you are male or female (nothing on your profile re gender and your posts here don't give it away).

    You urinate more at night, which might suggest something mechanical? The urine passage is improved when you lie down?

    If you are male, and depending on your age, you might want to get your prostate checked? I know that my father had similar problems (without gall bladder removal and without the constipation). The prostate can enlarge and block the passage of urine, which is painful (and I know that some men can feel woozy when passing urine and need to hold on to the wall as they get dizzy). Please don't worry that this means cancer, as it usually isn't (and wasn't in my fathers case)!

    Of course if you are female you don't have a prostate so......? You mention sons, so if you gave birth, again there could be mechanical problems that get worse as you age (incontinence also means not being able to pass urine as well as passing it when you don't want to!). There is now alot of help available (some surgical some via the physio), and your doctor should be able to help.

    Also I know that I (female) became very anaemic and would be thirsty and drink 3 pints of water and numerous cups of tea a day, but urinated perhaps 2 or 3 times a day and not nearly as much as was going in! Once I got my iron improved I lost 7 lbs in a couple of days (just by urinating!). If you are male you are much less likely to be anaemic, but male or female it is best to get your iron tested before starting any large quantity of iron supplementation.

    I hope you get some answers and feel better soon!

  • Hello thank you for at least reading and responding so nicely. I sound ridiculous but my family are concerned as its getting worse and no one know why. Have seen GP again and hoping to hear from bowel specialist again as bowel could be causing urinary probs. But regards pain, I am not diabetic so my daughter says you have got worse since gallbladder op so maybe something gone wrong . I hope to get it sorted asap. x

  • Do you, by any chance, have a prolapse of the bowel? That would also block urination if you are constipated.

  • Hello that is what they first thought but gynae said no prolapse.thank you for responding

  • Yes, but was the gynae talking about a prolapse of the Utérus? Not the same thing as a rectal prolapse.

  • It sounds like Interstitial Cystitis and can be hard to diagnose a cytoscope done in a Dr's office will not always pick it up and they often diagnose it by using a rigid cytoscope with hydrodistention under general anesthesia. Copied this list of symptoms from the Mayo Clinic

    Interstitial cystitis signs and symptoms include:

    Pain in your pelvis or between the vagina and anus in women or between the scrotum and anus in men (perineum).

    Chronic pelvic pain.

    A persistent, urgent need to urinate.

    Frequent urination, often of small amounts, throughout the day and night. People with severe interstitial cystitis may urinate as often as 60 times a day.

    Pain or discomfort while the bladder fills and relief after urinating.

    Pain during sexual intercourse.

  • Hello thank you for responding to my weird symptoms and long winded post. I will research some more and am still going to go again.something is wrong. But one person has commented too that dumping syndrome i have can cause pain from 1/3 hours after digesting and their grandfather had it and it affects blood sugars as insulin reacts quick and also bowels and wee output! Yours and this makes sense.def worse since gall bladder surgery.i do feel pretty naff!! Never mind will return to Go if have to.

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