Private thyroid specialist recommendations?

[Miniliz]

(Edited by Admin - any information by Private Message Please - in accordance with Guidelines)

Are there any private endocrinologists specialising in thyroid that Hashimoto's sufferers would recommend in the West Midlands / (south Manchester / north Birmingham) please?

I've seen my GP this morning and he is in agreement with me that I have Hashimoto's but because I have a report from an endocrinologist saying I don't, he is unable to proceed with treatment (he says I could have 50mcg thyroxine but he couldn't increase this until my TSH raises). He has recommended that I book an appointment with a private endocrinologist with a specialism and if this specialist is in agreement with my symptoms and the raised antibodies then we can treat it.

I have a blood form for TSH, T4, vit D and vit B12 in the meantime (I will go first thing tomorrow morning on an empty stomach!). Maybe my TSH will be raised by now, I am a lot more ill than when it was last tested so fingers crossed!

Have you seen someone who has treated you for Hashimoto's when you are presenting hypothyroid symptoms, with raised antibodies and 'normal' TSH? Even if you're out of my area I'd love to hear from you - I'm willing to travel further afield if there's nobody near here

Thanks in advance for your input

Liz

[shaws Administrator]

Your GP seems to be on the ball who would have prescribed 50mcg of levo. Paying to

see an Endocrinologist sometimes also means you might not be treated as you might expect.

I have edited your post slightly as no names must be published on the open forum. You will be sent a private message. Also email [e-mail] who has a list of doctors and at the same time ask for a copy of Dr Toft's Pulse article. In it you will see what he recommends if anyone has high antibodies should be treated. (He was President of the British Thyroid Association).

I've also taken the liberty of changing your post to 'Community' as it is automatically ticked 'everyone' which means it is published on the worldwideweb. If you wish to do so you can re-tick to everyone. Community means it is only published within the community.

Private Messages can be sent between individuals which means it is only between the people named in the private message.

GP should also check Vitamin B12, Vit D, iron, ferritin and folate.

[Miniliz in reply to shaws]

Thank you

I left the post as 'everyone' so my husband could follow it too - I will uncheck it. But thanks for the concern.

Apologies, I didn't realise that we weren't allowed to post names. So I look forward to receiving private messages with recommendations.

I will also contact Louise straight away.

Not requesting folate and ferratin was my fault - I was in a bit of a state this morning at the appointment and we covered a lot of ground very quickly. I will see if I can get these tested via the GP and if not I will request it if I have a private blood screen.

Thanks for your help.

Finally though, I am not sure what you mean by "Paying to

see an Endocrinologist sometimes also means you might not be treated as you might expect."

Do you mean that I might also end up being told I don't have anything wrong or that I might receive a more positive and useful response? Thanks in advance.

[shaws Administrator in reply to Miniliz]

What I meant - and not everyone has the same experience of course - that some members have been extremely disappointed by the response of the Endo particularly if they have remained very unwell when on levothyroxine and are quite desperate to feel well again..

[Miniliz in reply to shaws]

That makes sense, thank you.

I have previously been on up to 50mcg levo and felt well for two weeks. My understanding is that my body needed some more, so I then felt unwell again.

I haven't started on it again, we wanted to gather more information so I could potentially have the dose increased.

[shaws Administrator]

A fewf links:

thyroiduk.org.uk/tuk/about_...

thyroiduk.org.uk/tuk/about_...

hypothyroidmom.com/reversin...

[Miniliz in reply to shaws]

Thank you - I had the first two as printouts to show the GP this morning

[SAMBS]

Miniliz given your Consultant and Doctor disagree, have you seen the last blood test result, which presumably both your GP and Consultant had before you spoke to them both. H

Autoimmunity is not related only to the Thyroid, another organ or gland could be causing the immunity problem in your endocrine system! Look up the Endocrine system on Wikipedia, it explains how it works or not! Think about other conditions you may have also !

Post your blood test results on here, the Admins will help you out with assessing what the results telling you.

[Miniliz in reply to SAMBS]

Already done all that in my other posts Thanks though.