Looking for private endocrinologist in Kent or ... - Thyroid UK

Thyroid UK

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Looking for private endocrinologist in Kent or London

Vislavie
Vislavie

Hi there, not sure how this works but I am looking for a private endocrinologist in Kent or London following an absolute palaver with my GP. Had private tests done that show high antibodies (both thyroglobulin and peroxidase) but because my thyroid seems to be functioning ok at the moment (despite having all the symptoms of hypothyroidism), labs refuse to test for antibodies and referral to NHS endocrinologist has been declined. My TSH levels are currently 4.0 (were 4.5 a month or two ago), levels of free thyroxin and free T3 are ok although borderline. Most of my family have thyroid issues and both my brother and aunt suffer with Hashimoto's. I am desperate to get this sorted following a miscarriage in September as my partner and I want to try for a baby again and from what I have read online, my TSH levels are probably too high for someone trying to conceive and Hashimoto's can also cause issues in that regard (trouble conceiving, miscarriages etc.). Please if you know of a good and understanding endocrinologist in Kent or London who will consider the autoimmune component in my case and help provide me with the right treatment (whether medical or natural), I would be immensely grateful. Thank you.

6 Replies
SlowDragon
SlowDragonAdministrator

When TTC your TSH should be under 2.5

Some endocrinologist suggest under 2

verywellhealth.com/infertil...

Pregnancy guidelines

thyroiduk.org.uk/tuk/about_...

gp-update.co.uk/files/docs/...

thyroiduk.org.uk/tuk/guidel...

Absolutely Essential to test your vitamin D, folate, ferritin and B12. Have these been done recently?

Add results and ranges if you have them

Hashimoto's affects the gut and leads to low stomach acid and then low vitamin levels . Low vitamin levels affect Thyroid hormone working

Poor gut function can lead leaky gut (literally holes in gut wall) this can cause food intolerances. Most common by far is gluten.

According to Izabella Wentz the Thyroid Pharmacist approx 5% with Hashimoto's are coeliac, but over 80% find gluten free diet helps, sometimes significantly. Either due to direct gluten intolerance (no test available) or due to leaky gut and gluten causing molecular mimicry (see Amy Myers link)

Changing to a strictly gluten free diet may help reduce symptoms, help gut heal and slowly lower TPO antibodies

Ideally ask GP for coeliac blood test first plus vitamin testing if not been done

amymyersmd.com/2017/02/3-im...

chriskresser.com/the-gluten...

thyroidpharmacist.com/artic...

scdlifestyle.com/2014/08/th...

drknews.com/changing-your-d...

thyroidpharmacist.com/artic...

But don't be surprised that GP or endo never mention gut, gluten or low vitamins

Improve Thyroid Treatment campaign on Facebook- back in about Jan 2018 - post on there by someone who got excellent treatment in Kent ..... at Maidstone I think

Vislavie
Vislavie in reply to SlowDragon

Hi SlowDragon thanks for all the useful info! So I tested negative for celiac but I have Crohn’s disease and I generally try to eat as little gluten as I can. Also just had vitamins etc checked so will look at those results tonight. Would be great to get the name of that doctor/specialist in Maidstone... Does anyone know who that could be?

To add just a point of clarification re Abs testing, once you have tested positive for those antibodies there is no need to test again as you are and will remain forever someone with an autoimmune thyroid condition - whether those numbers go up or down, or go away. Additionally, it is not treated medically, only by life style changes; it is the resultant thyroid disorder that is treated by drugs.

Vislavie
Vislavie in reply to MaisieGray

Thanks MaisieGray and I’m happy to make lifestyle changes but as we want to try for a baby again I would feel happier if my TSH was below 2.5 and currently it’s not. And also I feel terrible so speaking to an endocrinologist would still help I hope.

porter5
porter5 in reply to Vislavie

nor do they mention trace minerals like zinc, chromium, boron, manganese.

have you tried the iodine patch test? see You tube and enter iodine patch test

also Dr Brownstein top man in the US. Very worthwhile.

Important to get enough protein,fats, and a certain amount of carbs. with glass bottled water.

Arguably the best man on the US Dr Brownstein on youtube. and the iodine patch test.

where do you get your iodine from. How is your diet? Blood tests largely a waste of time.

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