I've read through loads of the forum. It is very useful - thanks to everyone for posting. I'm hoping someone can provide some advice as I'm at the end of my tether. I have all of the symptoms of a thyroid problem but my test results aren't enough to get treated.
The background is I had post infection IBS for 2-3 years beginning about 4 years ago. It was a horrible experience and I went through the mill with every consultant sending me for loads of expensive tests before I found a consultant who made the diagnosis - He predicted it would clear up and thankfully it has pretty much cleared up as of 12 months ago.
Unfortunately despite constant diarrhea I gained weight during this period and have continued to gain weight subsequently. This is despite working out 6 times per week and a very tight diet (overseen by a personal trainer - who suggested a hypothyroid issue) I am also cold all of the time (hands, nose etc), am quite down and suffer from brain fog.
As I had hypo symptoms my GP did some tests but I do not know the results. One was low so she retested and told me it was fine. Subsequently my GP showed absolutely no understanding but reluctantly agreed to send me to an endo in Cork. I'm not sure hat she said to him in the letter but he did no tests. He said it was all in my head...it was so upsetting.
My husband read about a GP in south dublin who took this stuff seriously so I got an appointment with him. He is expensive and ordered loads of tests and I had me second appointment yesterday. The test results were inconclusive and
he refused to treat me as hypo.
TSH 1.06 (0.27 - 4.20)
Free T3 4.8 (3.1 - 6.8)
Free T4 15 (12.0 - 22.0)
the anti body test he did was Anti-Thyroperoxidase (anti-TPO?) which was 0.1 (0.0 - 5.61)
The only thing that came back as being unusual was DHEA and Cortisol both of which are low.
My cortisol was
Sample 1 awakening 6.8 (5.56-22.2)
Sample 2 4.00 (2.45 - 8.12)
Sample 3 2.4 (1.54 - 5.56)
Sample 4 0.9 (1.17 - 3.18)
The doctor prescribed DHEA but now wants me to do some really expensive gluten tests. I am a bit suspicious of these as I previously did FODMAP and had endoscopies for gluten...all of which showed I had no problems.
I now have no idea what to do next. I really feel that it is a thyroid / hormonal issue but am at a loss as to how to move forward
Has anyone had a similar experience?
Can anyone recommend a dr/consultant in ireland who will take me seriously, I am willing to travel to the UK if I could find a doctor/ consultant who could figure it out?
Feedback about doctors via private messages please in line with posting guideline #25, thank you.