Hi again melly
No not new since I changed meds. Was on levo only when it started. Been on levo for 28 years up to then with no problem. Suddenly my tummy started doing somersaults. After a couple of weeks went to Dr who did blood tests. Came back with only tsh result which was 0.22. So dr reduced my levo from 125mcgs to 100mcgs.
After about a week I started getting the hit flushes. After 6 weeks went down to 75mcgs. I then started to drip with sweat under slightest exertion. Even walking slowly.
Then another blood test revealed tsh tsh really quite high. Still no other thyroid blood tests. Anyway put levo back up to 100mcgs. By this time almost ten months had passed. Did another bloid test only this time I asked for all tfts to be done.
They came back at tsh 5.28 T4 above range at 22. T3 below range. I knew this was wrong so asked to see endo. I saw a private endo who said I wasn't converting properly so she put me on combo T4/t3. I was on this for just over 3 months. Bloid tests showed tsh down to 2.46 T4 11 and T3 3.2. Endo said t3 only. So was on T3 only for another few months but T3 had only gone up to 3.7. So she said I needed ndt. Well I've been on ndt since mid Feb. Last bloid tests showed tsh 0.45 T4 10.6 t3 4.
My endo did have me take an iron supplement as saturation was low. I took this for a month and flushes seemed to ease a tiny bit.
But due to a serious blood condition my haematologist said I had to stop iron as it would endanger my life. So I had to stop it. The Haematologist asked that my endocrinologist explain to him the importance of the iron but she refused.
I am on a chemotherapy drug for my bloid condition which lowers rbc saturation and the other iron.
I never feel tired but over the past few weeks my muscles have started hurting me bad in my back. It starts a couple of hours after standing up. I work on a till and it's a standing up job.
How did you get your cortisol levels right???
Did you have to lower your highs in order to higher your morning low???
Did dr peatfield guide you through it all and dud you tell him about your feeling if anxiety in your tummy??
Thanks Melly. Sorry this is so long