Hi all, I am a bit stuck so would be really grateful for any advice, or just support really.
As some of you may know, I was really ill for some months at the beginning of the year but was refused treatment by a variety of GPs & an NHS endo so ended up self medicating with NDT (I had a TSH of 4 at this point but TG antibodies over 100 times above range).
I followed Dr P's book, working on iron, B12, adrenals etc & was doing well, getting up to 1 3/4 grains where I felt very slightly as if I'd drunk too much coffee. My FT3 & 4 were both right at the top of the ranges then so I dropped back to 1 1/2. After 8 weeks on 1 1/2 I didn't feel so well, with aches & pains & spotty itchy scalp coming back. I also then had a severe ear infection & viral laryngitis in quick succession, which I now think may have been thyroid related too from some info I've read.
I was persuaded by a private endo to try standard levo in October, with the aim of then getting my GP to take over prescribing if I did OK - obviously with an eye on the cost etc. I took 75mcg for 3 weeks & felt absolutely terrible & my GP still refused to have anything to do with it anyway, so that plan failed! I didn't think 75 was enough anyway but was over-ruled. A blood test after those 3 weeks showed these results: TSH 1.22 (0.27-4.2) (risen from suppressed in just 3 weeks!) FT4 18.5 (12-22) FT3 4 (3.1-6.8).
I went back onto 1 1/2 grains NDT & had another test after a month & TSH 0.04, FT4 15.3, FT3 4.7 (same ranges) & put my dose up to 2 grains as I still felt unwell.
I have been on 2 grains now for 5 weeks & still don't feel right, particularly with achy shoulders & awful itchy spotty head again. But the worst thing is the anxiety. I have suffered with depression before & have been under a lot of emotional stress recently but I've never had this awful terrifying anxiety & insomnia, I'm exhausted & can't concentrate on anything.
So would it be reasonable to increase my dose slightly? Maybe 2 1/2 & 2 alternate days? I am slightly puzzled by this as back in May I was heading to over medicated on 1 3/4, but I feel like I need some more. Or should I just be patient & give 2 grains a bit longer? Or does anyone have any other advice?
Really confused & fed up - & utterly hacked off with doctors.