I'll be as brief as possible. Dx with endometriosis in 2004, been in constant chronic pain since 90s. Told in late 00s that I have ME. Over the last few years I've developed pretty much every symptom of hypothyroidism and various hormonal issues - I spent two years on a drug that put me in menopause and my hormones have felt screwed up ever since (completely lost the ability to be intimate for five years). Since I came off the pill a year ago, my cycles have varied between 3 weeks and 8 weeks at random. Every blood test I've had has been apparently "normal". Went to see a different GP in the practice - she said it was probably either hypothyroid or PCOS and sent me for hormone and TFT blood tests - had to wait ages as that cycle was 8 weeks.
Just went in for results and was told everything was normal. No problems at all. I broke down and told her my fatigue is so bad I haven't left the house in a fortnight, I'm gaining weight, constant tightening in my throat, insomnia, eczema, periods irregular, etc etc
She said "you're depressed". Rather than just accepting the pills and not taking them, I fought back. I told her I am NOT depressed. I suffered severe depression in my teens and I know how it feels. She said the problem with my cycle is stress, and she sees patients like me all the time, all the same symptoms and normal blood tests, and it's depression - then she said I don't have to accept this diagnosis if I don't want to. I said I'm sorry, I'm sure you hear this all the time but it's not depression. My mum is dying and yet my mood is not low, I'm not tearful, I'm generally positive just fed up with being ill all the time. She said that in that case it's just chronic fatigue and said she would refer me to the local chronic fatigue team.
I asked for a copy of my results and I expected to see my TSH within the guidelines but high - nope, it's quite low. My hormone levels are low but not outside the ranges. I don't know what to do.
Maybe it is just chronic fatigue and I'd latched on to the idea of it being my thyroid because at least that's treatable. I spent from 12-22 being treated like a faker until my endo dx, which has left me with nerve damage due to delayed dx.
now I've been trying from 27-32 looking for answers as to why I can't work or go out or even take a bath without being wiped out for hours. I'm not depressed but honestly I feel pretty low and desperate right now: I feel like it's time I have to just stop and give up. This is the third GP in my practice I've seen and she's the best of a bad bunch so I can't go to another - I'm on a lot of morphine and at least she isn't lecturing me on that. I know what they think - I'm not getting the answers i want so I'm just seeing another. As it is I've been discharged by all hospital depts and left to rot - in London I had amazing care but down here I'm just being fobbed off.
Here are my results for what it's worth - she ordered a TFT but only two results came back, not sure if that's normal.
Any advice would be appreciated. Would consider finding the money to see an endocrinologist privately and just ruling this out once and for all but money is tight and not sure what this would cost with tests.
Serum free T4 level 15 pmol/L (10-22)
TSH 1.7 mu/L (0.3 - 5.5)
And the others:
Sex hormone binding globulin 37 nmol/L (25 - 122)
Testosterone 0.4 nmol/L (0.2 - 1.7)
Free androgen index 1.1 (<4.0)