Hi, this is going to be a long one, please be patient with me.
Living in the UK for 45 years, had been going back and forth to dr about fatigue, he first said i was going through menopause at 32, then at 35 said because i was a vegetarian i was loosing my hair, fatique skin problems, memory loss, at 40 he says my gastro problems are nerves and depresion.
I moved to France ten years ago, the dr here treated me for 3 years with gastro problems, diviticulitus, then hiatus hernia, after 9 years going back and forth to the dr, she then said it may be my thyroid,
I was sent for many blood tests, put on levothyroxine, sent for scans were they discovered a small nodule, when my blood tests were not improving and my symptoms were severe, (now shaking, headaches, passing out, mood swings etc etc) i was then sent to have a biopsy, the dr said it was that small he didnt know why he was wasting time or money on doing the test, i told him not to do it, i didnt want to go through this stress if i didnt need to, he said because an specialist had sent me, he would have to do it.
5 days later i received a phone call to go back and collect my report from the clinic, (strange, as they normaly send them to the specialist) I was informed the test had come back as positive and not to worry, (yeh right)
I was given an appointment to see a surgeon in Bordeaux, he gave me a date for surgery, i had this done 8 weeks ago, they removed my thyroid and discovered there were a further 3 nodules that were also carcinetic. 4 weeks ago i was told it was the safe type cancer to have (im still laughing)
4 profesures had read my notes and now sugested that i have radioactive treatment. I went to collect and see one of the specialists 5 days later, he then told me i do not need treatment, i asked why the change in diagnoses within 5 days, he told me all results go to Paris, when they had come back, it was stated because my tumour were smaller than their guidlines, they would not give me treatment, butttttttttttttttttttt collectively they were bigger, he then said "it's up to you" i was so angry and said "excuse me, i am a house wife you are a proffesor, how on earth do you exspect me to give you an answer.
I have now contacted them 3 weeks after appointment and said i want the treatment, Paris is now deciding if they will give it to me.
I am so frightened, i still have all my symptoms, i thought they would dissapear after surgery, it is so difficult to get information over here in France, i speak a little French but do not understand the medical terminology.
Please if you have the time would you please let me know what you would do in my possition.
Thank you so much, please ignore all spelling and grammer mistakes, if i go back and correct, i know i will not post this.
Good luck every one, this illness is so cruel.