Hi everyone from Australia, this is my first post ever. I have such a long story but will try to keep it short. I have been taking Thyroxine 100mcg for almost 38 years for an underactive thyroid after having most of my thyroid removed back in 1976. I have never felt well but every time I told my doctor I was given a Thyroid blood test and told the results were normal. Last year I returned to the doctor complaining of hair loss which had increased significantly as well as all the usual symptoms I have been complaining about for years. Another blood test was done and I was told to reduce my dosage to 75mcg. I was so angry as I was feeling terrible and my doctor stated she was not prepared to increase it. I decided then that I had to take my health into my own hands and find an answer as something was definitely not right. I have spent the last year researching everything I could find on Thyroid. I went to see a naturopath who I thought may be able to help. I had thyroid blood tests including RT3 test which I didn't know existed. This came back as high so she referred me on to a doctor she thought may be able to help me. He sent me for a huge amount of tests and a further RT3 which came back as even higher than the first one. He put me on NDT I think its two grains. Every two months I had another blood test which came back with a higher RT3. My last appointment with him was in Dec 2014 when he said my Free T3 was now in the higher end of the range and I should be feeling better. He didn't mention a problem with the RT3 result. So after much research I have come to the conclusion that I have a problem with T4 conversion to T3 and decided to self medicate a trial of T3 only. Its been about 6 weeks now and I am slowly starting to feel a bit better. My hair isn't coming out as much, the pains in my legs have reduced and I am losing weight with dieting. Heres where it gets a bit worrying. I went to a doctor last week about some slight heart flutters I have been having lately. Everything appears to be normal but he sent me for a thyroid test and I didn't tell him I was no longer taking Thyroxine. Well the Lab rang him to see what was going on as my test results indicated that I had almost no T4 in my blood and yet I had said I was taking it. OOPs !!! Here are my results if someone could be so kind and tell me if they are as they should be being on Cynomel only. The doctor wants me to see an endocrinologist but I am not sure I want to. Please advise me, your thoughts are appreciated.
Free T4 <5.2 (9.0 - 19.0)
Free T3 2.3 (2.6-6.0)
TSH 0.01 (0.3 - 4.0)
I am taking 50mcg Cynomel which I got from Mexico. All my other tests are within range. I take lots of supplements as advised from all you lovely people. Should I be taking a bigger dose of Cynomel since my Free T3 level is low? I did stop the medication two days prior to the test.
I have taken my temperature every day for a year and it never goes above 36.5 usually much lower than that. I did request a 24 hr saliva test for cortisol as I do have a lot of stress in my life and I have chronic insomnia but the doctor had never heard of it and told me to ask the endo when I see him, if I see him.
Thank you all in advance.