I am agonising over how to deal with my hypothyroidism. My tests (previously posted here) show that I am hypo but not enough for the NHS to treat. I need to do something because of my fatigue and my weight is increasing. Even if my GP would agree to give me levo I am not sure that I want levo, nor that I want my GP or an endo to be in control of my treatment, given some of the experiences of people here.
So I just ordered Thiroyd, but now I'm worrying that if I become dependent on Thiroyd outside of the medical system then what happens if I need other drugs that conflict with it? What happens if I have a stay in hospital and they won't give me my Thiroyd? What happens when I get older if I have to go into a care home? No Thyroid dispensed there I am sure.
So I'd like to know how others have dealt with this situation? Do you go and tell your GP? Do you go and get the thyroid tests first even if you know you'll be told you are normal and you'll be sent away? I really don't want to be lying to my doctors for the rest of my life, especially if that might have negative consequences for my future treatment, but what might be the consequences of disclosure? Quite honestly I'm rather scared of the whole NHS machine.