Hi all. Well I was An app for today as they wanted explain Why my spine referral was rejected that was ok. I didnt expect them to do anything as spines not showing anything serious enough .I was.then told referral pain clinic might be advisable as they are specialised can look into it Better I said no I cancelled my old Dr referring me there years back when my walking problem started . As it took ages and they rang to apologise said did still need to be seen I said no As not in pain and other might need app more. I then said about my walking problems and how Dr I saw at the same surgery last year had treated my thyroid I said you're not doing anything about my walking problem tho he said no As it may all come back once treated adequately. So I said I have been taking medication in hope gets better he rolled his eyes..I don't agree he said. I said we'll its strange as the chest clinic specialist I saw last year told me that low thyroid can affect mobility and walking as affects your hips and base spine. He rrolls eyes again well I dont agree .I mentioned thyroid causes body pain and He said no it doesn't do that I said yes it does !! No it doesn't He said I was getting annoyed now I said it does as I am one having it and have been treated before.20 years back and was just the same i gave up as he was quoting his ten minutes were up he asked What i wanted to do leave it to see in 3months how m thyroid is I said yes. I asked about getting a new script for 25 mcg thyroxine as I am getting diff brands from chemist rather have same. He said what goodwill that do I said chemist will give me 50 mcg I can split them so same brand not a good idea He said I said well these affecting my bowels and that's it then !! Sorry cant help he.said I just got up and said I am not getting anywhere here am I. Thanks and went whats the point I mentioned I hadn't been referred thyroid specialist he said no we Usually deal with it. I mentioned my thyroid was still out and thyroid UK had checked my latest tests and still lot to go. He said thyroid UK who are these people ? Qualified Drs. ? I said may be not but are people who feel like I do been through it. I left feeling even more let down really theres no-one in the medical profession who can treat you adequately and if have various thyroid problems you need to pain clinic as obviously there's something going. On. Think it's like someone said you get tested everything as they don't know enough about thyroid looking for other things. So what now. X
Been Drs feel left and upset: Hi all. Well I was... - Thyroid UK
Been Drs feel left and upset
So sorry about this. Can you see another doctor? Frankly, he needs complaining about.
Thank you. For replying I changed to This surgery after 42 years at my other one as getting nowhere and told you have ten mins. One complaint only . This Dr is one o f many in the practice I seem to see a diff one every time this one was alotted the job of explaining my spine referral rejection that's all but did try to send me pain clinic instead . I see no reason for that alternative.methods o f controlling pain I don't need as take paracetamol or zapain if I needed to .I don't . I can just see why thyroid uk is needed badly by the poor unfortunate people who dont get on with just taking thyroxine . Really if that's the best support you can get from a g p with so much lack of knowledge. Where would you go. ? After 20 years of researching all the symptoms and why I felt so Ill I think I have some knowledge. Maybe its the fillers that affect people but Drs should know. I am sure I was reading a nhs.info on making sure you have the same brand . X
Yes, you can ask for a specific brand if you are struggling with another.
As y to your spine/pain/mobilty problems, why are you so certain it is your thyroid causing the problems?
I saw the Dr last January at the new surgery he did blood tests checked everything I knew my thyroid levels were low but I wouldn't take them again as made I'll on thyroxine and had no symptoms before at all 7 years out of my life I was walking ok until prob 9 years ago starting,with stiffness in my right foot hobbling around but didn't need stick . Etc walked holding on hubby arm a bit and was working anyway when the head pain and walking suddenly got worse started June 23 overnight holding onto furniture walls unbalanced scared of falling shuffling around I couldn't walk on my own got a stick and mobility scooter just in case . I didn't use it as know need to use my legs
. Saw this Dr who said thyroid needs treating I was scared to try it again but Dr said ok to come off if I felt rough again luckily I didnt notice it this time
still not walking and precarious on my legs I said to this Dr oh but you're not doing anything about my walking he said but it might all come back once your thyroids treated .. I thought is that likely ?
Shortly after that I was referred to chest clinic. As coughing up mucus non stop. Dr there said thyroid low can cause mobility issues and affects Hip and spine so he learnt at med school . I was relieved to hear that .
Just have to hope it is that .as I have read it on thyroid info on net and others on here have had similar so all I can think really have had Mri. on my spine twice and nothing that bad to account for it . Physio checked me December and said he can't see why not walking either I . Have leg strength . It has improved mid January where I got up and felt my legs were ok. Surprised hubby. Went downhil again last month had a increase in thyroxine tho it's hard to know anything for sure just have to keep going on thyroxine I guess. Thanks.
I did ask diff brand just wanted 50 mcg split in two . Happy taking the 100 accord one but not the mercury pharma 25 mcg one. Just wanted 50 mcg which meant splitting pills. He wouldnt entertain doing that said not a good idea. All same medication et c think Lots on here take it alternate days even to lessen dosage . It all hard going can understand Drs not wanting you saying what's right they are suposed to know after all my faith in Drs went long time ago sadly his attitude changed soon as mentioned thyroid UK redness in face even. Xx
Glad he had second thoughts when he heard Thyroid UK was a reference point for you.
I feel like I am up.a corner now really. I don't go back to Drs complaining I am going chilled again or body aches or stomach issues . And today I said I hadn't been referred to endocrine tho was supposed to be last year the gp decided to ask them a question 're treating me to save.time this meant they cancelled my referral as dealt with his question . My last Drs were ok about referring me straight to endocrine this one says the don't as deal with it themselves. This Dr said no point sending you orthaepedics. Rheumatology. So if my next review shows readings thereabouts normal reference range I can see I will be left. And possibly think everything normal. Must be anxiety or something.
My knee is throbbing it has a sharp searing pain sometimes when I walk no warning my hip feels like grating. I can't trust my legs so very wary. I just don't understand why no-one who deals with bones walking or even neurology can't see me . Meanwhile I suffer awaiting my next review the Dr said by phone see in 12 weeks time . I feel rough now and don't want to be fobbed off again .today has put me off Drs full stop . Have requested I have another prescription for 25 mcg Levo a diff brand as dont get on with pharma. Now I read the side effects it sounds like I have .I will speak to pharmacist and have wockhardt if necessary. Hopefully they will reply tomorrow. . Abdo doesn't feel right. So tempted to just stop taking it. There's no help really. Just here. X
He got annoyed and redfaced saying who are these people. Are they qualified Drs ? Angry more than anything I said maybe not but they are people who have suffered it and know. Guess Drs won't know unless had it the!selves I know who I would rather believe . Feedback form sent by Drs to see how app went I said poor . Dr didn't agree with other Drs diagnosis of my thyroid condition affecting my walking . Had little knowledge of underactive thyroid and refused to give me the same brand of thyroxine I asked for as no point. No-one will care or investigate anyway. But I can't lie. X
Have you had your B12 levels tested? Some of your symptoms could be that. Similar to underactive thyroid.
I can so relate to what you are saying, I have had awful experiences with doctors too. I have also decided to take matters into my own hands and have just got Thyroid S from Thailand and from now on will be treating myself, but it is an expense I should not have to bear. I wanted to go onto Armour but that is utterly unobtainable due to cost. Thyroid S is just achievable.
I can feel another NHS big battle looming as I went to reorder on repeat my usual HRT (which I have been on for 30 years) only to find it no longer on my repeat list, ordered anyway and then got a text to say doctor wishes to 'discuss' my HRT with me. Have a phone call with them tomorrow but am really worried as I will decline even more without HRT. Praying this is not another medication I will have to source and self fund!
Hope you are getting on well with the Thyroid S, I am just on day 2 but have started on a really low dose of half a grain.
Just read your post and really wanted to say how much I feel your pain. I have struggled for years with doctors and thyroid issues. Most recently I have developed severe neuropathy and have real difficulty in walking, started with aching legs like I was climbing Everest and then plantar facilities (I'm assuming) then a couple of weeks ago severe low back pain, couldn't stand upright and could only walk holding onto things.
Thyroid seems to affect every aspect of our bodies and I am sick to death of doctors not taking these symptoms seriously. I am now going to self treat using Thyroid S and testing from Blue Horizon. Is this something you can afford to do? It's too early to know if it will make a huge difference but I was on NDT a few years ago and was much better on that, I'm guessing I don't convert T4 properly and need T3.
I doubt an endocrinologist will help as, in my experience, they seem to be as ignorant as the GP's.
I really hope you can find some relief for the walking issues.
Hi thank you your story sounds so much like mine exactly I also have the heel pain burning and don't think it helps walking never been looked into .as they are usually wondering where to start with so many things going on .I think there's neuropathy going on too but think if I told Dr's that they would think I had been on net too much .they don't like you knowing more than they do but sadly we have to. It took over my life for 7 years researching why I felt so unwell after taking thyroxine with no symptoms living my life happily just the reading said so pre menopause .I think that a bad time to be checking readings anyway I was referred to a specialist who didn't have a clue either and actually shouted at me I had my hubby with me and had been struggling to work and I told him that I wanted to cone off them as this wasn't right I had nothing wrong now everything was hurting or brain fog couldn't sleep bones hurting dizziness going cold on beta blockers now how could that be good health?
. I was told to go back to him if any problems the secretary took pity and fitted me in to see him he was angry as said he has to get up 15 mins earlier as secretary booked me in and nothing he can do as readings perfect and he could tell I was suffering anxiety over taking a harmless thyroxine pill . So that was that. I saw another after elsewhere who put me on t3 on it own which sent me into a brain dead state vegetable like and that was the last time I took it .wasted 7 years there and so far 2 years more of misery this time I had symptoms tho so guess I needed to take then you just can't get anyone who knows to help that's the trouble .with all I have going on I still can't be referred abd like you I know what they are like
It's miserable isn't it? I wish I could help but I'm as bad myself at the moment and seeking answers. I'm hoping the thyroid S will help because NDT is so much better than Levo for so many patients.
Have you tried strict dieting? sometimes fasting helps and sometimes cutting out all processed foods will help but it's quite a faff cooking from scratch (and shopping) when you feel so unwell, it might be worth trying, mind you, strict dieting like this does have a tendency to feel like another punishment on top of all the other issues.
I wouldn't worry about doctors scathing comments about getting info on line (I've seen many do this during a consultation) to be honest if they did their job properly we wouldn't have to spend hours and hours trying to fix ourselves when it's actually their job and what they are paid huge salaries for!
And if another doctor shouts at you - shout back twice as loud and take notes or record the session!!
Yes that Dr was 20 years back I was completely bewildered as to why I was ill on something so supposedly harmless . Worrying was fact the supposed consultant specialist didn't have a clue why I had aches pains dizziness. On beta blockers .generally nothing working right I never had illness in my life always well then took thyroxine as told it might be fatal if didn't . Then I might as well have no life anyway hard to see the advantage ...but seems we all have our horror stories with treatment.. I am OK just walking and sore all over tingly thigh leg dead .not sure why . A very long list hope you feel better soon x
It's outrageous isn't it? I often think it would be great if I could just give these doctors my symptoms for a month or two so they could get an idea of what it's like trying to have any sort of life with this.
I could write a book of quotes on what doctors have said to me over the years!
Hope you feel loads better soon, you could try NDT and diet but get a test to see what your thyroid levels are before you make any changes. x
The government even issued a document on the fact that some patients don't get on with certain brands. Give this to you dr/ surgery/ pharmacist
Thank you, I think moving from 75 Levo to half a grain might be too little but the T3 might help. I think 1 tab might be a good starting dose but I'll give it a couple of days on the half just to be sure I'm okay on it as it's only day 2.
Ah, that makes sense, if you've not been on anything I think it's wise to start really low and you obviously needed it because you didn't have the racing heart thing. I can't be doing with cutting tabs in half! I am going to increase to a whole tab in a few days. I'm guessing Thyroid S works well for you?
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